"Joining the group, meeting others with epilepsy and listening to them has really helped me"
What can you expect?
- A warm welcome from our volunteers – you can spot them easily from the ‘coffee and chat group’ table sign.
- Space to listen – we try to choose quiet venues where the group can hear each other without being disturbed by others.
- Space to talk - ask questions or share your story if you are comfortable and ready to do so.
- Understanding – everyone’s epilepsy is different but group members will often have had similar experiences
- Advice and information – group support each other by sharing their experiences and advising how Epilepsy Action can help further.
- A chance to make friends – often people who attend the groups go on to become good friends.
Feel free to just drop in for one or two meetings or become a regular member of the group.
Where can you find a group?
- We have over 100 groups across England, Wales and Northern Ireland.
- Groups meet in a variety of venues from coffee shops to community rooms.
- They are all in locations with good public transport links. The buildings themselves are checked to ensure they are accessible for all.
- Search our map to find your nearest group.
- Just turn up on the day or phone the local volunteer or local manager to check arrangements
What if there isn’t a group near me?
- Our Freephone Epilepsy Action Helpline gives you an opportunity to talk to a trained adviser about living with epilepsy and get your questions answered.
- Forum4E - free online community for people with epilepsy and carers of people with epilepsy.
- There is lots of advice and information on our website, Facebook page and YouTube channel.
- Take an online course to help you manage your own epilepsy.
- Keep in touch to hear about any future events in your area.
- Consider applying to become a volunteer to start a new group or get involved in other local activities.
"It has been a safe haven to discuss the undiscussable"
"The group has helped me deal with and manage the different side effects of the medication I'm on."
"The group certainly makes us realise that life goes on"