The All-Party Parliamentary Group (APPG) on Epilepsy is a group of MPs and Peers who have an interest in epilepsy. They represent all political parties. The APPG is an informal group within parliament that gives people the opportunity to come together on a subject they are interested in.
Epilepsy Action provide the secretariat for the APPG on Epilepsy. This means that we help to run the group on behalf of the Chair, Paula Sherriff MP.
The APPG on Epilepsy hosts a number of meetings and events in parliament throughout the year. Working with members of the APPG we can submit responses to inquiries or consultations.
Epilepsy Action wants people to have the opportunity to be involved in the APPG and its agenda. You can email firstname.lastname@example.org to register your interest. We can then keep you updated with news and events. You can email us with your suggestions for future meetings.
Members of the APPG
The APPG on Epilepsy is registered with parliament. You can read the official registration on the parliament website here.
The Chair of the APPG on epilepsy is Paula Sherriff MP, who is the MP for Dewsbury. Paula is one of Epilepsy Action’s Vice Presidents and has a personal link with epilepsy. Because of this, Paula is passionate about supporting the condition in parliament. There are four Vice-Chairs supporting the APPG. These are: Dame Cheryl Gillan MP, Valerie Vaz MP, Sir David Amess MP and Baroness Hussein-Ece.
Getting your MP to become a member and attend APPG events is a great way to get them to understand epilepsy and support you better.
What the APPG has been doing
Purple Day 2018
On Purple Day 2018, the APPG on Epilepsy invited MPs and Peers to come along and ‘go purple’. The aim of the drop-in session was to give MPs and Peers the opportunity to learn more about the condition. People were able to speak to a number of epilepsy organisations, including Epilepsy Action, SUDEP Action, Young Epilepsy, Epilepsy Society and Epilepsy Research UK. They were also able to meet people with epilepsy, and family and friends of people with epilepsy.
MPs told us they learnt a lot and it was great to see so many of them ‘go purple’ for Purple Day. We hope to run a similar event next year.
Epilepsy and PIP
On Monday 9 July 2018 the APPG held an event to discuss Personal Independence Payments (PIP) and epilepsy. Figures show that people with epilepsy are the most likely group to have their benefits cut or removed during the change from Disability Living Allowance (DLA) to PIP.
Attendees heard from people with epilepsy who have experienced the PIP process. There were some very moving contributions and some common themes emerged. The APPG also heard from Jen Durrant from the charity Z2K who have recently published a report on disability benefits and Marsha de Cordova, the Shadow Minister for Disabled People.
Feedback from the event was very positive and the APPG will be following up on points raised with the government and others.
What the APPG is doing next
We are busy planning the next APPG meeting. When we have a date we will make sure we share it here. If you are on the APPG mailing list, we will also email you with the details.
If you have a suggestion for a future topic for the APPG to cover, please email email@example.com.