We exist to improve the lives
of everyone affected by epilepsy

PIP pledge

Personal Independence Payment (PIP) is failing people with epilepsy. Get your MP to take the Epilepsy PIP Pledge and demand change.

What’s the issue?

Personal Independence Payment (PIP) is a benefit which helps with some of the extra costs caused by long-term ill health or disability. To be awarded PIP, you must live in England, Scotland, Wales or Northern Ireland. You must also go through an assessment process. This can include filling out a form, submitting further evidence and having a face-to-face assessment. If you are not awarded PIP you can ask for the decision to be reconsidered (mandatory reconsideration). If you are still unhappy with the outcome, you can appeal the decision.

Epilepsy Action believes the PIP assessment process is failing people with epilepsy. Many people are missing out on an award that they are entitled to. This award would have a positive impact on people’s daily lives. We believe that the assessment is not effective at capturing and reflecting the nature of epilepsy.  It does not assess the impact epilepsy has on an individual’s daily life.

Three out of 5 people with epilepsy who were previously in receipt of Disability Living Allowance (DLA) had their award decreased or disallowed following a reassessment for PIP.  These are figures from the Department from Work and Pensions. Epilepsy is the condition with the highest rate of people having their award decreased or disallowed 

Epilepsy Action found in a survey about PIP, 87% said they felt the assessor did not have an understanding or knowledge of epilepsy. We believe that assessors make assumptions based on inadequate training.  They lack the knowledge and understanding of epilepsy required for them to make a fair assessment of an individual’s needs. 

Epilepsy Action wants the government to urgently review and assess the whole PIP assessment process.

How you can be involved

We are telling MPs about the problems with PIP for people with epilepsy.  We are asking them to take our PIP Pledge. Taking the pledge shows they recognise the problem and are committed to doing what they can to change it.

Ask your MP to take the Epilepsy PIP Pledge

We want you to tell them about the difficulties people with epilepsy are facing when applying for PIP. We want you to tell them what it is like for people with epilepsy when they don’t have this extra financial support. We want you to tell them, they must do something to change this.

If you want to ask your MP to take the Epilepsy PIP Pledge, please fill in the form below. We will email you a template letter or email to send to your MP.  We will also send you instructions on how to do this. There will be space in the letter for you to share your own experiences if you wish.

You can share information about the Epilepsy PIP Pledge on social media. The more people that write to their MP, the more likely change will happen.

if you are writing on behalf of an organisation
we will reply to you at this email with a template email for your MP

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