We fight to improve the lives
of everyone affected by epilepsy


I was diagnosed with a epilepsy at the age of 7, a normal day I was sitting watching TV eating a baby bell and it happened. Full blown seizure. Never have in ever touched a baby bell since, even though I know full well it had nothing to do with that. I'm now 20 and it's been a journey.

Ive been admitted to hospital countless times, had numerous tests, seen so many doctors and then when I was in Year8 the school couldn't take no more and decided I need to stay at home until things got better.
The worst part of my illness is the fact that it's a invisible disability and sadly these type of illnesses is something a lot of people don't understand.
Going through school of course I had some of them making jokes, laughing, pretending to have a fit because they thought it was something to make a joke out if, but I also had the most amazing friends who helped me through so much of all of it. Although even some teachers thought I was faking it to get out of lessons, which does just prove how much more awareness needs to get out there.
As Ive got older and I went to college and then into a work place things have got better in a way of a lot less immature people. Although the seizures haven't stopped.
I take Epilim, Keppra and Clobazom which is still not controlling it.
I have photosensitive Epilepsy, which means any strobe can affect me but I also suffer with non epileptic seizures which mean if I don’t get enough sleep, I get stressed out, on my monthly, i forget to take my medication which luckily never has happened a seizure could happen.
Luckily I have an amazing family, boyfriend and friends who have made the effort to understand my illness. Even though my epilepsy is still not under control, having people in my life who understand it helps me feel better every single day. Learning to understand epilepsy, or even attempting to, is the most important thing anyone can do for epilepsy sufferers, or for anyone with an invisible disability.

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