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Epilepsy Today

Prescription from UK specialist made for nine-year-old whose cannabis-based medicine was confiscated at the airport

12 Apr 2019

A nine-year-old girl, whose cannabis oil had been confiscated at the airport on Saturday, has been given a prescription for the medicine from a UK specialist. 

Teagan's cannabis oil had been confiscated at the airport after her mother Emma Appleby brought the three-month supply into the UK illegally from the Netherlands on 6 April.

Epilim Chrono stock

9 Apr 2019

Update 9 April 2019: Epilim Chrono 500mg tablets are temporarily out of stock again, but Sanofi tells us they will be back in stock in the week beginning 15 April 2019.

Original story - 4 March 2019: We have heard that some people are having difficulty getting Epilim Chrono from their pharmacist. Sanofi has told us that 200mg and 300mg tablets are in stock. 500mg tablets have been out of stock but are expected to be available at the beginning of March. The exact date may vary according to where you live and which wholesalers your pharmacy uses.

Some epilepsy medicines “cannot be stockpiled”, NHS list reveals

9 Apr 2019

On 3 April, BBC Newsnight reported that some medicines, including some for epilepsy, bipolar disorder and neuropathic pain, cannot be stockpiled.

This comes after the Health Secretary Matthew Hancock said in parliament that medical suppliers had been asked to stockpile an extra six-weeks’ worth of medicines. This is to ensure medicine supply continues in all Brexit scenarios.

Milpharm topiramate stock in the UK

3 Apr 2019

Milpharm topiramate tablets are temporarily out of stock in the 50mg and 100mg strengths. Milpharm expects to have both strengths back in stock in the first week of May.

The 25mg and 200mg tablets are in stock.

Other manufacturer’s versions of topiramate are available. If you have any concerns about taking a different manufacturer’s version, speak to your GP, epilepsy nurse or epilepsy specialist.

Accord topiramate stock in the UK

3 Apr 2019

Accord topiramate tablets are out of stock in the 50mg and 100mg strengths. Accord does not know when they will be back in stock.

The 25mg and 200mg tablets are in stock.

Other manufacturer’s versions of topiramate are available. If you have any concerns about taking a different manufacturer’s version, speak to your GP, epilepsy nurse or epilepsy specialist.

Gabitril (tiagabine) – 15mg tablets out of stock in the UK

2 Apr 2019

Gabitril (tiagabine) 15mg tablets are temporarily out of stock. Teva, the company that makes Gabitril, expects to have them back in stock towards the end of May 2019.

The 5mg and 10mg tablets are in stock, but they may not be available at all wholesalers. If your pharmacist is having trouble getting hold of Gabitril tablets they can contact Teva for help.

Answering some questions about childhood epilepsy to mark Purple Day 2019

26 Mar 2019

For over 10 years, on 26 of March we have marked Purple Day, the international epilepsy awareness day. This is always a powerful day, full of unity, inspiration and information. It allows people to show their support for everyone living with epilepsy, share their experiences of the condition and raise some money and awareness.

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