Seren is eleven years old. She has had complex uncontrolled epilepsy since birth, experiencing up to 100 seizures daily.
The families of children with severe epilepsy and epilepsy charities are pleading with the UK government to act on promises made two years ago around access to cannabis-based medicines.
A new 2020 study from Northern Ireland suggests that people with epilepsy are not getting access to vital epilepsy support.
Rachael Santos and Danielle Kennet were nominated for the award by their mum, Belinda Abbott who says they have shown her that “life is worth living”.
More than two-thirds (70%) of children eligible for epilepsy surgery to treat their seizures were not referred, a new report has found.
Reggie, 9, was nominated for an award by Rochelle, the mum of his friend Ellis.
Emma Murphy and Janet Williams are the founders of the Independent Fetal Anti Convulsant Trust (IN-FACT).
Eight year old Jack was nominated for a Helping Hand award by his dad Richard.
Sienna has been awarded a Helping Hands award for the fantastic support she gives to her older sister, who has severe epilepsy and complex needs.
Paul Thirkettle was nominated for an award by his wife, Rachel.
Paul is carer to Rachel, their ten year old daughter, and his mother– all of whom have epilepsy. Rachel says they would not know what to do without his unwavering support.