We fight to improve the lives
of everyone affected by epilepsy

Warning message

This article was published in March 2014. The information may be out of date. Please check our epilepsy information or our site A-Z.

‘Helen’s Story’ raises epilepsy awareness

7 Mar 2014

A new photographic project has been launched, designed to raise awareness of epilepsy. The project is called ‘Helen’s Story’ and is a stunning series of photographs that showcase one girl’s experience

Matt Thompson is a photographer. His (then) girlfriend Helen is a photographic model. Helen has epilepsy, but found – as many people with the condition do – that she was constantly met with misunderstandings and stigma.

Together, they decided to raise awareness of the condition by creating a series of beautiful photographs of Helen. Each of these would be combined with real entries from Helen’s diary, describing her feelings about her epilepsy and its effect on her life and relationship with Matt.

An image from 'Helen's Story'The project is now called ‘Helen’s Story’. It is available to view or to download free of charge on Matt’s website. The project represents a beautiful photographic work and a sensitive and insightful exploration of life with epilepsy.

‘Helen’s Story’ has been received with great interest and was the focus of several articles in UK newspapers The Observer and The Guardian over the weekend. Read more about the project online or read a related article about epilepsy-related stigma, including an interesting debate about stigma in the comments section.

If you would like to share images or experiences of your epilepsy, upload them now on Epilepsy Action’s Snapshot webpage.

There are no comments yet. Be the first to comment...

Question about your epilepsy?

Your question will be sent to our helpline advisors.

Have a comment about this page?

All comments are reviewed by a moderator before publishing. Comments will be edited or deleted if they are offensive, libellous, slanderous, abusive, commercial or irrelevant.

We ask for your email when you make a comment through this website. This means that we can let you know directly that we have replied to you. By making a comment through the website, you allow us to use the comment in our publicity without using your name. If we would like to use your name, we will email you to get your permission.

The content of this field is kept private and will not be shown publicly.
CAPTCHA
This question is for testing whether you are a human visitor and to prevent automated spam submissions.
1 + 2 =
Solve this simple math problem and enter the result. E.g. for 1+3, enter 4.