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This article was published in March 2014. The information may be out of date. Please check our epilepsy information or our site A-Z.

‘Helen’s Story’ raises epilepsy awareness

7 Mar 2014

A new photographic project has been launched, designed to raise awareness of epilepsy. The project is called ‘Helen’s Story’ and is a stunning series of photographs that showcase one girl’s experience

Matt Thompson is a photographer. His (then) girlfriend Helen is a photographic model. Helen has epilepsy, but found – as many people with the condition do – that she was constantly met with misunderstandings and stigma.

Together, they decided to raise awareness of the condition by creating a series of beautiful photographs of Helen. Each of these would be combined with real entries from Helen’s diary, describing her feelings about her epilepsy and its effect on her life and relationship with Matt.

An image from 'Helen's Story'The project is now called ‘Helen’s Story’. It is available to view or to download free of charge on Matt’s website. The project represents a beautiful photographic work and a sensitive and insightful exploration of life with epilepsy.

‘Helen’s Story’ has been received with great interest and was the focus of several articles in UK newspapers The Observer and The Guardian over the weekend. Read more about the project online or read a related article about epilepsy-related stigma, including an interesting debate about stigma in the comments section.

If you would like to share images or experiences of your epilepsy, upload them now on Epilepsy Action’s Snapshot webpage.

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