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This article was published in July 2009. The information may be out of date. Please check our epilepsy information or our site A-Z.

It's my life

1 Jul 2009

Hi,

I am leading an Epilepsy Action campaign to support young adults and teenagers with epilepsy.  To make this campaign successful I need young people under the age of 23 to help.

Most days your epilepsy probably won’t be an issue, but at other times it may leave you feeling frustrated.  You may wonder how epilepsy and anti-epileptic drugs may affect your relationships, social life, education or long-term health.  If you’re a young woman, you may wonder about the safety of contraception and pregnancy too. 

I have written a few ideas of what I think young people with epilepsy want. I need you to rate my ideas.  If you wish, you can also tell me what information you need, when you need it, and what you would like us to do. 

I also need people to post a shout-out, which we can use in our campaign.  The shout-out could be a letter, text message, phone or video clip, a viral, or a piece of art.  The main thing is to tell young people with epilepsy about yourself and any part of your life with epilepsy. 

Through sharing your real-life experiences, you will help to support many young people with epilepsy.  You will help us to prove that they are not alone, and that support is out there.  

If you are interested in taking part in this campaign and would like to know more, you can post a message, email me at ncrosby-mckenna@epilepsy.org.uk.

Thank you,  Nicole, Epilepsy Action development officer for women.

UPDATED: Thanks to everybody who share their experiences and stories. The closing date has now passed.

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