A number of organisations have pushed for the Additional Learning Needs and Education Tribunal Bill (ALN Bill) in Wales to include medical conditions such as epilepsy. These include Epilepsy Action Cymru, Diabetes UK and The Royal College of Paediatrics and Child Health (RCPCH).
The amend to the ALN Bill was backed in October by Minister Alun Davies. The bill will now go into the next stage of the process to becoming law.
In England, there has been a legal duty to support pupils with medical conditions since 2014. But there hasn’t been something like this in Wales yet.
The RCPCH explained that it has had long-standing concern because the support provided at schools in Wales can vary. It said that while some schools already provide good support, some families have had to fight to ensure their children are safe and included at school.
The organisation called this a large step forward in helping to set a standard framework for supporting children at school in Wales.
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The Welsh government has published its Neurological Conditions Delivery Plan for 2017-2020. This is aimed at helping improve access to care for people with neurological conditions like epilepsy, cerebral palsy and Parkinson’s disease.