Developing a preconception care pathway for women with epilepsy in the UK

What's it about?

  • Identifying essential support that women need
  • Describing good standards of care
  • Developing a pathway of stages or steps to support women
  • Developing a patient-reported outcome, to measure impact in service and in future research

How can I take part?

You can take part if you are:

  • A woman with epilepsy aged between 16 to 50 years, their partner, spouse, family, friend or carer
  • A health professional who works with women with epilepsy
  • A commissioner of services for women with epilepsy
  • A researcher
  • A person involved in providing help and support for women with epilepsy

The research team are particularly interested to hear from women who identify themselves as marginalised, women who have struggled to access pre-pregnancy care and women who identify themselves within minority groups.

What will I have to do?

This is the second phase of this research study. You will be asked to complete an online survey to further understand the essential preconception support women with epilepsy need.

How do I get involved?

To register your interest, please call (0151 556 3721) or email preconceptionstudy@thewaltoncentre.nhs.uk

Further details are also available at: http://tinyurl.com/epilepsypreconceptionstudy.

Is there a deadline?

1 December 2021

Who is conducting the research?

A research team based at The Walton Centre NHS Foundation Trust and the University of Liverpool.

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