Developing a preconception care pathway for women with epilepsy in the UK

What's it about?

  • Identifying essential support that women need
  • Describing good standards of care
  • Developing a pathway of stages or steps to support women
  • Developing a patient-reported outcome, to measure impact in service and in future research

How can I take part?

You can take part if you are:

  • A woman with epilepsy aged between 16 to 50 years
  • A spouse or partner of a woman with epilepsy
  • A carer, parent or friend of a woman with epilepsy

We welcome responses from everyone who takes part, but we are really interested to hear from people from the following areas:

  • Scotland – Kircaldy (Fife)
  • England – Liverpool and Knowsley
  • Wales – Newport
  • Northern Ireland – Belfast

What will I have to do?

We are inviting you to take part in the first stage of a study to develop a care pathway for women with epilepsy.

If you agree to take part, you will be invited to an interview or a focus group discussion about your experiences.

  • Interviews will take place on the telephone or as a virtual face-to-face meeting by video call
  • Focus groups will be held online, and as a virtual group meeting, or by video call

How do I get involved?

For more information or to take part you can contact the research team:

Is there a deadline?

1 July 2021

Who is conducting the research?

A research team based at The Walton Centre NHS Foundation Trust and the University of Liverpool.

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