Developing a preconception care pathway for women with epilepsy - survey now open

This study aims to determine what essential content should be included in the preconception care of women with epilepsy.

What's it about?

  • Identifying essential support that women need
  • Describing good standards of care
  • Developing a pathway of stages or steps to support women
  • Developing a patient-reported outcome, to measure impact in service and in future research

How can I take part?

You can take part if you are:

  • A woman with epilepsy aged between 16 to 50 years, their partner, spouse, family, friend or carer
  • A health professional who works with women with epilepsy
  • A commissioner of services for women with epilepsy
  • A researcher
  • A person involved in providing help and support for women with epilepsy

The research team are particularly interested to hear from women who identify themselves as marginalised, women who have struggled to access pre-pregnancy care and women who identify themselves within minority groups.

What will I have to do?

This is the second phase of this research study. You will be asked to complete two online surveys to further understand the essential preconception support women with epilepsy need. There will be a gap of a month between the first and second surveys. Each survey will take approximately 20-30 minutes to complete.

How do I get involved?

Please click here to open the survey

To register your interest, please call (0151 556 3721) or email preconceptionstudy@nhs.net.

Further details are also available at: http://tinyurl.com/epilepsypreconceptionstudy.

When you register, you will be given a code to use for the survey. Please write this down. A month after you have completed the first survey, you will be sent an email with a link to the second survey.

Is there a deadline?

Registration for the study will conclude in June 2022.

Who is conducting the research?

A research team based at The Walton Centre NHS Foundation Trust and the University of Liverpool.

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