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Epilepsy and having a baby

This information was written by Epilepsy Action’s advice and information team with guidance and input from people living with epilepsy and medical experts. 
 

Our thanks
Epilepsy Action wishes to thank Professor Pamela Crawford, York District Hospital, UK for reviewing this information.  

 

Introduction

Epilepsy affects around 230,000 women in the UK. As a woman with epilepsy, you may have lots of questions. Does epilepsy affect my periods? Which type of contraception can I use? Can I take hormone replacement therapy (HRT)? The aim of these web pages is to answer these questions and more.

If you have any further questions about anything to do with epilepsy, contact an adviser on the Epilepsy Helpline. You can also contact your family doctor, epilepsy specialist, or epilepsy specialist nurse.

This information has been produced under the terms of The Information Standard.

  • Updated June 2011
    To be reviewed June 2013

Comments: read the 6 comments or add yours

Comments

Hi, I am 27 yrs old and had my first seizure after 6 hrs giving birth to my son last year. We did not worry about this further and put it aside as due to baby shock. But I had another seizure last month - Aug 2010. MRI did not show any abnormality however EEG did show as epileptiform activity. I am currently on a single dosage of trileptol 300. I used to to have these intense sensations of fear right from my child hood. I even have them every now and then. I can usually talk something during this time but these feelings go away after a minute or two. Just wondering if these are somekind of seizures. Doctors however say that the 2 seizures I had and the brief sensations of fear are not related. Just want to advice people to seek medical help immediately after a first seizure.
Thanks, Pat.

Submitted by Patricia on

i know how you all feel, its like you are lost and to everyone who is ignorent to the condition think you are an alien. i had my first fit when i was 16 years old and was aout cold for an hour they took me to the hospital and phoned my family who of course rushed there straight away i used to be a professional kick boxer and they first put the fit down to to many hits to the head the fits kept happening over time and people couldnt understand why, now they say its stress related after all the tests i have been given tegretol carbomazepine epilim and some giant purple tablets i dont even know what they are called, and none of them are working i try to tell close ones and the doctor but it seems no one is listening to me. i have recently got married i am now 21 and all i get off my partner is go and get a job and basically i have no right to criticise others which i dont because im lazy how the hell can i be lazy when ppl wont insure me because im unpredictable i dont know my trigger but since she and i have been arguing i seem to be having more i always tell everyone its a cretain family member just to keep the peace so i dont have any more arguments but sick of it now cant break away need some advice just wanna shoot myself and end the stuff im living in cant take no more how can i explain to people what it is if they dont want to know and just gode me for an argument and then i get stressed and try and fight these attacks please help me thankyou x

Submitted by lisa louise whi... on

Hi,
First I would like to say how helpful this website has been since I found out I have epilepsy a few weeks ago. My drs had originally diagnosed panic attacks but I now realise they were petit mal seizures as I would have deja vu, feelings of absolute terror, very real premonitions, funny metalic taste in my mouth and absenses. One terrifying time I had all the above symptons just before I was about to get on the bus. I then couldnt speak and could only nod or mumble...the bus driver was very unhelpful which was very embaressing. This episode lasted quite a while as my work friend said I was strange when i went into work.

Like a lot of people on the site I didn't even know I had epilepsy until I had a grand mal seizure at work. I felt a little strange before hand, tried to talk to my friend telling her not too worry, I just feel a little bit odd - the next minute I woke up in an ambulance with another work colleague looking at me terrified.. I then fitted again in the ambulance and passed out. It took me a while to realise what had gone on as I felt quite strange when I came too. My friend at work explained to me what had happened I felt very embaressed at first as i was shaking all over the place, had my arm up like the statue of liberty, I was pulling faces, i was sick, had an accident and I was making strange noises. I have now realised I have to stop worrying about things like that as I wouldnt judge if it happened to anyone else

Apart from the early days of being diagnosed as having panic attacks, the drs have been brilliant. Since I had my grand mal seizure things have moved very quickly, I have had a MRI scan, have been diagnosed as having temporal lobe epilepsy and am now on tempra medication. I wasn't really keen on being on the medication but after I had my grand mal seizure I was having 4/5 mini seizures a day so I realised I had to stop being a control freak and just take the bloody medication. I've only just started taking the medication a few days a go so feeling a little dizzy and tired. Hopefully it will settle down soon. I am also waiting for the results of my mri scan so I will find out if there is actual evidence of the seizure - however I have been warned that often the scans do not find any signs. I just wanted to say thank you to everyone who has posted messages as they really helped me when I was feeling scared and upset about having my grand mal seizure. Teresa xxx Apologies if I have rambled on lol xxx

Submitted by Teresa on

I have had epilepsy since I was 5 years old. I am currently changing my medication and have had a seizure that was a biggy! The scary thing was is that I was alone when it happened. I knew something was not right as My throat and tongue was sore, as I bit both sides of my tongue.
I am really worried and scared, I have always been lucky enough to have some one with me while I have had a seizure of some sort.
I have spoke to my GP and Speacialist Nurse at the epilepsy clicnic, the only advise was to be with people as much as I can. Is there any other kind of help about as My husband works so do the rest of my family and my son is at school. I am really shoken up and I have never felt this way before.

Submitted by michelle on

Hi Michelle

It’s not unusual to worry about having a seizure when you’re alone. You might find it helpful to get in touch with other people with epilepsy, to share how you are feeling. You can contact people with epilepsy from all over the world on our on-line community, forum4e.

Some people with epilepsy find it helpful to carry or wear some kind of fall alarm that can alert other people (usually by telephone) if they’ve fallen during a seizure. To find information about different types of alarm available, you can contact the Disabled Living Foundation, tel. 0845 130 9177.

Alternatively, many councils in the UK offer a Careline alarm service. This is a system that allows you to alert someone if you need help, for example before or after a seizure. There’s a monthly charge for this service. You could contact your own council to find out if they provide a Careline alarm service, or something similar. You’ll find your council’s details in your local phonebook or by doing an internet search.

When you are out and about by yourself, you might find it reassuring to carry an epilepsy identity card or wear some identity jewellery. This way, if you have a seizure, people who are around you will understand what is happening. If you’d like details of some companies that sell identity jewellery, you can find these on our website: Companies that sell identity jewellery. You may also wish to get a free epilepsy awareness card from Epilepsy Action.

I hope that helps.

Amanda
Advice and Information Team

Submitted by Amanda@Epilepsy... on

Im 24 in feb and have idiopathic epilepsy. The only link to seizures is alcohol and as ive got older, it takes less andless alcohol to trigger a sizure. I only have seizures about every 4-6 months or so and am on pregabalin, lamotrigine twice a day and frisium when needed. Im concerned as im on polythrapy and am unsure about the effects of pregabalin onpregnancy. I am hoping to try for a baby with my boyf in about 2 years time but if pregabalin is a problem during pregnancy it will probably take that long to switch to either monotherapy or another AED. Has anyone had an issue being pregnant taking pregabalin, lamotrigine and frisium? Thanks, Carla

Submitted by Carla on

We can provide references and information on the source material we use to write our epilepsy advice and information pages. Please contact our Epilepsy Helpline by email at helpline@epilepsy.org.uk.

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