We exist to improve the lives
of everyone affected by epilepsy

News

Young, gifted and living with epilepsy? Epilepsy Action needs you

15 April, 2010

Imagine being able to tell your friends about your epilepsy and finding that it’s no big deal.  Imagine getting the epilepsy information you need when you want it, leaving you free to just get on with it.

The theme of National Epilepsy Week this year is young people with epilepsy. Having epilepsy, seizures and taking anti-epileptic drugs may have a huge impact on the lives of teenagers with epilepsy. It may affect how you cope in lessons, what sports you play and what time you go to bed. 

Care Quality Commission review

14 April, 2010

Epilepsy Action is calling for a ‘special review’ of long-term neurological conditions by the Care Quality Commission (CQC).

Each year the CQC conducts a certain number of special reviews. A special review would look at the health and social services for people in England with long-term neurological conditions, such as epilepsy.  The review would judge and score them in each part of the country. These results would be available for the public to see.

National Service Framework for Long Term Conditions – Review

2 December, 2009

In 2005, the Department of Health launched the National Service Framework for Long Term Conditions. This publication set out a programme for ten years to provide the best care for people with long-term conditions. 

We understand there will be a review of how successful this has been, halfway through its ten year period. An on-line survey has been made to gather as many opinions as possible.

Postal strike information (2 November 2009)

2 November, 2009

Epilepsy Action relies on the generosity of the public and businesses for around 90 per cent of its income. Without this support many of our essential services would not be possible.

The Royal Mail postal strike will inevitably affect donations coming into Epilepsy Action by post.  We’d like to reassure donors that, although mail is taking longer than usual to reach us, it will arrive. There is no need to worry about sending donations to us via Royal Mail.

National Voices: Online social care green paper poll

13 October, 2009

National Voices has set up an online poll to find out what people think about the UK government's new proposals to reform social care.

National Voices is an umbrella organisation which brings together national voluntary organisations representing users of health and social care.

They would like to hear from anyone involved or interested in the social care system,so they can best respons to the government's consultation.

Changes in the driving regulations for a first epileptic seizure for UK drivers

8 October, 2009

If you're in the UK, and you have had a first, single, unprovoked, epileptic seizure, you may now be able to get your licence back:

  • after six months from the date of the seizure for a Group 1 licence
  • after five years from the date of the seizure for a Group 2 licence.

You will need to stop driving and inform DVLA (for England, Scotland or Wales) or DVA (for Northern Ireland).

To get your licence back, you will need to fulfil the following criteria.

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