Epilepsy Action

“ We exist to improve the lives
of everyone affected by epilepsy ”

News

Epilepsy Action is looking for young people between 13-19 and their parents (in the UK)

4 September, 2009

Epilepsy Action is looking for young people between 13-19 and their parents (in the UK) to be involved with a Question Time event at the House of Commons.

Background

The idea behind the event is for MPs to meet with young people (and parents) to discuss how to best support people with medical conditions, in our case epilepsy, at school. 

Where and when?

The event will take place in the House of Commons on 27 October (during half term) from 2.30pm-4.30pm. There will be several young people at the event representing different health conditions.

New Quality and Outcomes Framework indicator for epilepsy care in Great Britain

13 August, 2009

Epilepsy Action welcomes the proposed new epilepsy-related indicator in the recommendations for 2010/11 Quality and Outcomes Framework.

The indicator, if adopted, would provide an incentive for family doctors to ensure that women taking anti-epileptic drugs (AEDs) receive vital pre-conception counselling.

The Quality and Outcomes Framework (QOF) is a system for measuring the performance and payment of general practitioners (GPs) in the National Health Service. It was introduced in 2004 and financially rewards GPs for "good practice" in their surgeries.

Letter from health minister Ann Keen to strategic health authorities in England

31 July, 2009

During National Epilepsy Week, the All Party Parliamentary Group on Epilepsy met in Westminster. Health Minister Ann Keen attended the meeting to hear about the work being carried out on behalf of people with epilepsy. She announced that she would be writing to all Strategic Health Authorities (SHA) in England to highlight this work, and ask them to improve their services for people with epilepsy.

It's my life

1 July, 2009

Hi,

I am leading an Epilepsy Action campaign to support young adults and teenagers with epilepsy.  To make this campaign successful I need young people under the age of 23 to help.

Most days your epilepsy probably won’t be an issue, but at other times it may leave you feeling frustrated.  You may wonder how epilepsy and anti-epileptic drugs may affect your relationships, social life, education or long-term health.  If you’re a young woman, you may wonder about the safety of contraception and pregnancy too. 

Northern Ireland children’s epilepsy services story [updated]

10 June, 2009

BBC Northern Ireland’s Newsline programme is this week doing an investigation into children’s epilepsy services in the region.

They’re following the story of three-and-a-half year old Billy Caldwell, who has the rare Angelman syndrome.  You can watch the first part of their story on the BBC News website.

We’re told that the Northern Ireland health minister will be being interviewed on Newsline on Thursday. 

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