The 'Excellence in Epilepsy’ journalism award is an initiative of the International Bureau for Epilepsy (IBE) and UCB.
Journalists from around the world are invited to submit stimulating, informed and compelling news and feature stories on epilepsy.
The award seeks to increase awareness and improve understanding of epilepsy. The closing date for entries and nominations is 30 June, 2009. There's more information on the IBE website.
Sainsbury's is promising to create more than 500 partnerships with local charities across the UK. With your help, Epilepsy Action could be one of them.
Each Sainbury’s store and depot will choose their own charity. The store staff will support the charity throughout the year by volunteering and fundraising.
Epilepsy Action is working on an appeal to raise awareness of our ' Time for change' campaign and to raise vital funds to work towards equal medical care for all.
Have you had a particularly GOOD experience with your epilepsy nurse/NHS treatment?
OR
Have you had a particularly BAD experience with your lack of epilepsy nurse/NHS treatment?
AND
Do you want to tell your story to help others with epilepsy? Would you be happy for your experiences to be published?
We would like to draw your attention to a recent publication which establishes a link between some anti-epileptic drugs and decreased bone mineral density.
The Medicines and Healthcare products Regulation Agency (MHRA) has published the warning in its ‘Drug Safety Update’ (Volume 2, Issue 9 – April 2009).
The anti-epileptic drugs which may pose a risk are: carbamazepine, phenytoin, primidone, phenobarbital, and sodium valproate.
As of Wednesday 15 April, 142 Members of Parliament (MP) have signed the early day motion (EDM) supporting the Epilepsy in England: time for change report and calling for enforcement of the National Institute for Health and Clinical Excellence Guidelines (2004) for epilepsy.
This week’s Book of the Week on BBC Radio Four is ‘The Music Room’ by William Fiennes. It's his account of his “magical childhood” in a moated castle in which he grew up with his older brother with severe epilepsy.
This month our press team’s focus has been on two things - the sad death of Ivan Cameron and our annual fundraising event, National Doodle Day 2009.
You can view our statement here. Ivan’s death touched people across the nation and helped to raise awareness of both epilepsy and cerebral palsy.
There’s only six days left for you to vote in the battle for top celebrity doodler of 2009.
January was an exciting month in terms of media coverage for Epilepsy Action. We have been working up to the launch of our Epilepsy in England: Time for Change report at the House of Commons for several months. The launch was on Wednesday 14 February and thirty MPs attended, which is an impressive turnout. This included five members of the Health Select Committee. An Early Day Motion (EDM 441) has been tabled and so far has 94 signatures.
Hundreds of celebrities are taking part in National Doodle Day, to raise money for Epilepsy Action and the Neurofibromatosis Association. Doodles by the likes of Sophie Dahl, Jonathan Ross and Heston Blumenthal are being auctioned on eBay in aid of National Doodle Day now!
