Epilepsy Action

“ We exist to improve the lives
of everyone affected by epilepsy ”

News

Statement on epilepsy and Ivan Cameron [updated 26 February, 9.45am]

26 February, 2009

We do not yet know the circumstances of Ivan’s death but we do know that he had severe epilepsy, among other conditions.

Our thoughts are with the family and we hope that they will be given the space to grieve in private.

There are 58,000 children with epilepsy in the UK. Thankfully 70 per cent  of these children have their seizures well controlled by medication. However, over 17,000 children have uncontrolled epilepsy and experience seizures that can affect their daily life. They may also have other disabilities and medical conditions.

Epilepsy debate in parliament today (Tuesday 24th)

24 February, 2009

Members of parliament will be debating the recent report 'Epilepsy in England: time for change' this afternoon.

The half hour adjournment debate will take place in Westminster Hall at 1pm (UK time). We believe that the minister, Ann Keen, will be responding to the report.

You should be able to watch the debate live online at http://www.parliamentlive.tv/Main/Live.aspx.

Media blog for November 2008

22 December, 2008

Here in the UK, as winter draws in, the nights are dark and the snow is falling you could be forgiven for the urge to curl up in front of the fire and watch a good dose of daytime television. This month, one of our Accredited Volunteers was featured on his Morning. She went along to the Liverpool studio to talk about life with her seizure dog.

Channel 4 documentary about Young Carers (9-14 yrs)

11 November, 2008

Epilepsy Action has been approached by a documentary production company who are developing a film for Channel 4 focussing on young carers in the UK. The company are looking to work with children aged 9-14 years who are just about the only carer for another family member with epilepsy.

The aim is that the audience will be able develop a deep understanding of what their family’s life is like. The film is intended to be from the carer’s viewpoint, showing the realities of their every day life and what it is like to be in their position, looking after a parent or sibling.

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