Epilepsy Action

“ We exist to improve the lives
of everyone affected by epilepsy ”

News

Living with epilepsy in England?

28 October, 2008

We've done a survey of health trusts to find out about current services available for people with epilepsy. The results of this survey will be made available to individual health trusts to help inform them about any gaps in service provision. The results will also allow Epilepsy Action to assess epilepsy services available in different parts of the country.

These results will be presented in a full report which will be launched at the House of Commons on 14 January 2009.

Government consultation on the future of care needs in England

1 October, 2008

The UK government is consulting on the future of the care and support needs in England.

Statistics show that, with an ageing population, in 20 years' time a quarter of the entire adult population will be over 65 and the number of people over 85 will have doubled. The growth in the number of people with care and support needs will put tremendous pressure on services. There's also likely to be issues around the financial support that they receive through benefits and other funding streams.

Epilepsy on BBC Radio 4’s Woman’s Hour today

24 September, 2008

Advances in treatment for children with epilepsy were discussed on BBC Radio 4’s Woman’s Hour programme this morning. New research on the ketogenic diet is being presented this week at the European Congress on Epileptology in Berlin. Lead researcher Professor Helen Cross, from Great Ormond Street Hospital and the National Centre for Young People with Epilepsy, spoke to the programme.

English health minister online webchat today (Wednesday 27th)

27 August, 2008

Ann Keen MP, one of the ministers at the English Department of Health, is taking part in a webchat on healthcare in the UK today (Wednesday 27th), at 4pm UK time.

It's taking place on the Downing Street website, which says that "Ann would like to hear your views, comments and questions. Now is your chance to directly question the Minister for Health".

'Blood and Guts'

21 August, 2008

Thanks to Jo who runs our online community for pointing out a TV documentary about brain surgery that was shown on British TV last night. Luckily, for those of us who missed it, will be shown again tonight (Thursday 21st) and is available on the BBC iPlayer.

'Blood and Guts: A History of Surgery' is a new BBC Four series, and one of the people shown in this first episode was a woman who was having surgery to treat her epilepsy.

UK epilepsy services survey

6 August, 2008

One of our stated aims is to "bring about permanent change for the social and medical benefit of people with epilepsy". We achieve this in a number of different ways, including asking people about their personal experiences of living with the condition - and this is what we're doing at the moment.

If you live in the UK, and have used epilepsy services in the last two years, then we would like you to complete our survey.  

Guaranteed places in this year’s Great North Run

16 July, 2008

Epilepsy Action is looking for people to take part in the Great North Run this October.

It’s one of the most popular half marathons in the world.  Taking place in the north-east of England, it starts in Newcastle city centre, crosses the famous Tyne Bridge, passes through Gateshead and South Tyneside before finishing at the seafront in South Shields.

If you’re interested in doing the Great North Run for us, we have a number of guaranteed places available.   All we ask you to do is aim to raise £275 sponsorship and pay a £40 registration fee for your place.

Blog posting number one

19 May, 2008

Welcome to the first posting in the new Epilepsy Action blog.

Obviously, the first thing I need to post is to explain, for those people who don't know, what a blog is.  A blog, short for 'weblog', is a bit like an online diary, with lots of short pieces of writing about things the blogger (the person who is writing the blog) is interested in.  There are millions of blogs across the web, covering every possible subject.

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