A Scottish sheriff has this week said that people with epilepsy should be told about the risk of Sudden Unexpected Death in Epilepsy (SUDEP).
In the 2010 Spending Review, the government announced changes to some disability benefits. This included plans to stop paying the mobility component of Disability Living Allowance (DLA) to disabled people living in residential care.
The Low Review has now been set up to look at how the mobility needs of people living in residential care are met and funded. This is an independent review lead by Lord Low of Dalston.
The review will report to the government in October, and is now looking for people to share their views and experiences.
The Department of Health in England has agreed to a proposal that will see it take responsibility for epilepsy surgery in children and young people.
Epilepsy Action believes that this is a major success and big step forward. This will increase the number of operations carried out each year. It should see a number ‘centres of excellence’ for epilepsy surgery being set up across England.
On 4 July 2011, Epilepsy Action officially launched Epilepsy Action Northern Ireland. The event was well supported and over 70 people attended. Seven MLAs (Members of the Legislative Assembly) attended, which is good considering they are in recess for summer.
The Prime Minister, Rt Hon. David Cameron MP, will meet with a group of epilepsy representatives, including charities, to discuss the condition.
This was announced in response to question put to him by the Member of Parliament for Walsall South, Valarie Vaz MP, at Prime Ministers’ Questions earlier today.
Your help is needed to make a new UK benefit work for people with epilepsy
The information below is for residents of England, Scotland and Wales.
The Department for Work and Pensions (DWP) are looking for volunteers to help test its new criteria for assessing people for personal independence payment.
The personal independence payment (PIP) will replace working age disability living allowance (DLA) from 2013-14.
They are looking for people from England, Scotland and Wales who have epilepsy and are receiving working age DLA.
Channel 4 is developing a documentary series which would follow a group of people with a range of conditions and disabilities on a quest to find love.
BBC Radio Four’s ‘Bookclub’ programme is looking for people to take part in a radio discussion about the book ‘The Music Room’ by William Fiennes.
The book is about William's childhood, which was dominated by his brother Richard. Richard was known for his towering presence, his inventiveness, his great passion for Leeds United, and the issues he faced due to his severe epilepsy.
We're delighted that a Quality and Outcomes Framework (QOF) indicator for pre-conception counselling has been confirmed for 2011/12. This change will start from April 1.
