Email helpline
helpline@epilepsy.org.uk
Update 24 June 2009:
We are now able to reply to emails within 5 days.
If you live in the UK and would prefer to speak to an epilepsy adviser, please contact the Epilepsy Helpline, freephone 0808 800 5050.
Email replies
If you have a question about epilepsy, you can contact the Epilepsy Helpline by sending an email to helpline@epilepsy.org.uk. A member of the advice and information team will reply to your email. We aim to reply within five working days, but may sometimes take longer, for example if we need to do any research for your reply.
You will receive your reply by email. If we have any booklets or factsheets which we think you might find helpful, we may ask you to email us your name and address. You do not have to give us this information if you prefer not to.
Please check the spelling of your email address before you send your question to us. If it not spelled correctly, our reply will not arrive in your inbox.
We regret we cannot reply to forwarded emails.
Confidentiality
We take every measure to protect your privacy. We won’t pass your details to anyone else and we won’t contact you again, unless you give us your permission to do so.
Please remember that your computer stores copies of your sent emails. To keep your message confidential from others who may use your computer, delete the copy in your Sent Items folder and delete our email address if it has been stored in the address box on your computer.
If you don’t want to use your usual email address to send us your question, you can choose a free web-based email address such as those available through Hotmail, Yahoo or Lycos. You don’t have to use your real name, so you can remain anonymous. You will also choose your own login name and password, so no one else will be able to read your emails without your permission.
The aim of the Epilepsy Helpline
The aim is to provide advice and information on all aspects of living with epilepsy. We have access to a wide range of up-to-date information resources and are pleased to provide general assistance.
We provide confidential advice and information to anyone with an interest in epilepsy, but we will not tell you what to do.
We can give general medical information but we do not offer a medical diagnosis or suggest treatment.
We can give general information on legal issues specifically related to epilepsy such as driving and the Disability Discrimination Act. We cannot, however, take up legal cases on your behalf.
AOL users:Our emails are not getting through to AOL addresses at the moment. If you have another, non-AOL, email address, please use that one when asking your Helpline question. |
Services
- Introduction
- Epilepsy Helpline
- Email helpline
- Text message helpline
- Live epilepsy advice and information online
- Insurance
- Magazines - Epilepsy Today
- Magazines - Epilepsy Professional
- Magazines - Seizure
- Epilepsy Action local branches
- Epilepsy conferences and seminars
- Sapphire Nurse epilepsy specialist nurses
- Training
- Volunteering
Epilepsy Helpline
- UK freephone 0808 800 5050
- International +44 113 210 8850
- Email: helpline@epilepsy.org.uk
- Txt msg: 07797 805 390 info
- Live online: Wednesdays 1200-1400 UK time






Comments
I emailed the helpline with a question a week ago. Earlier that day I had tried to phone but bouldn't get any response. Can you tell me where I can get advice.
Thank you for your comment. I'm really sorry to read you've been waiting for a reply, although I understand from my helpline colleague that she has now sent you a response.
We do aim to reply to all helpline emails within five working days. However, we recently received a large number of helpline emails at the same time as experiencing staff shortages. This meant it was more difficult to reply within this timeframe.
As a result of your feedback, we will do our best to make sure that in future we keep people regularly updated of any expected delays to the service.
Hi!
My 10 week old grandson is in hospital having tests. He has started having very occasional "absences" where his eyes go to one side and he's " not there" for about 30 seconds. There is no stiffness or floppiness but it's all very scary. His mother has epilepsy . Any advice/feedback/thoughts would be much appreciated. If it doesn't turn out to be epilepsy what on earth do you think it could be?
Many thanks
Barbara