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of everyone affected by epilepsy


Story for parents to explain their epilepsy

These two stories are for anyone with epilepsy who is a parent or cares for a young child.

When you decide to tell your children about your epilepsy is your decision. This story aims to help you with that conversation.

Children need to know what epilepsy is and that it’s nothing to be afraid of. They also need to know what they should do if you have a seizure.

Children can also get information about epilepsy from our children's website 'Just for kids'

Comments: read the 2 comments or add yours


I think these books are a very good start and think we need to make more people aware of them. I want them even though I have no children, as my epilepsy has shrunk my eggs somehow at the mo. My brother has children and doesn't allow me to see them because his ex-wife told him I wanted to kill his kids. Just because I told her it doesn't look like I can have any of my own she called me a liar and then we had a row and she told my brother I wanted to kill them. He believes her. Which I did not say and never would, I love kids and am losing weight so I can have ivf soon. I have asked my mum that even though I can't see my nephews she can at least let them know about their aunts disabilities. She has asked me to get them for her.

I think we need to explain to kids what Jerking is though properly as well because now where there are things like Jerk chicken the two things will get very confused. Thanks

Submitted by Lisa Kemsley on

Hi this book is a great idea. I was diagnosed with epilepsy 3 years ago i didnt think i could concieve after a ruptured ovarian cyst and a bad miscarriage but i stayed on contraceptive i didnt get jag due to other things going on and found out im pregnant a few weeks ago im around 11 weeks. Im over the.moon but im worried about my child having to sometimes look after me and knowing i wont be able to bathe my baby on my own just in case. I will be showing my child this book when they are older. Lisa im sorry about your eggs and how your sis in law is treating you my bfs ex has stopped contact with his kids and destroyed our relationship with my step daughter as she didnt like how close we were as she thought i was trying to brainwash her against her now im abuser whos been physically and.emotionally abusing her behind bfs back a d im faking epilepsy. Xxx

Submitted by Laura on

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