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Childhood epilepsy with centro-temporal spikes

Childhood epilepsy with centro-temporal spikes (CECTS) is one of the most common types of epilepsy in children. It affects boys slightly more frequently than girls. Almost one in 5 of all children who have epilepsy will have CECTS. It usually starts between the ages of 3 and 10 years, and often stops around puberty (aged 14-18 years). Children who have this type of epilepsy are usually well otherwise, and do not have major learning difficulties. However, a significant minority (possibly 10-15%) of children will have difficulties with reading and language, or with drawing and visuo-spatial skills.

The cause for CECTS is not known. It is probably caused by a genetic abnormality but none have been found as yet.

Other family members, such as a parent or grandparent may also have had this type of epilepsy when they were children. Occasionally, family members may have a different type of epilepsy.

Previous names for childhood epilepsy with centro-temporal spikes

  • Benign rolandic epilepsy
  • Benign rolandic epilepsy of childhood (BREC)
  • Benign epilepsy with centrotemporal spikes (BECTS)

Symptoms

The seizures that happen in CECTS are usually focal seizures, which start in only one part of the brain. Seizures often start as the child is asleep or just about to wake up in the morning. They have a feeling of tingling (like pins and needles) on one side of their mouth, involving the tongue, lips, gum and inner side of their cheek. Children sometimes describe their tongue or lips as being “fizzy” or “buzzing”. The seizure may also involve the throat, which may cause the child’s speech to be unclear and therefore difficult to understand. The child may make strange throaty or gurgling noises, and it is often this which alerts parents that something may be wrong. The child often knows what they want to say but cannot speak properly.

The seizure may also cause twitching movements (called clonic movements) or a stiffness (called a tonic movement) of one side of the mouth or face. These movements may then spread to the arm and/or the leg, usually on the same side as the movements in the face.

Occasionally, the seizure activity may spread to affect both sides of the brain. When this happens, the child loses consciousness, becomes stiff and has regular, jerking movements of their arms and legs. This is called a focal to bilateral tonic-clonic seizure. The child may also be incontinent. After this seizure, the child will be sleepy and some children may sleep for a few hours.

Diagnosis

The diagnosis of this epilepsy involves a full and accurate history of the seizure(s) and an electroencephalogram (EEG) test. The EEG records the electrical activity in the brain. In CECTS, the EEG will pick up epileptic activity in the centro-temporal – also known as the rolandic – area of the brain. Sometimes the EEG may be normal. This doesn’t mean that the child doesn’t have this epilepsy syndrome. Occasionally, if the first EEG is normal, the hospital doctor will arrange a sleep-deprived EEG recording. This is because abnormal brain activity on the EEG is more easily seen when someone is tired or falls asleep.

Brain scans, including magnetic resonance imaging (MRI) scans are usually normal. The majority of children with a very clear and obvious history and EEG of CECTS do not need to have an MRI brain scan.

Treatment

Treatment with an epilepsy medicine is not always considered necessary, because seizures usually remit (‘go away’) when the child gets to puberty. Also, many children will only have one or 2 seizures in a year, and therefore will not need any treatment. However, many parents, and some doctors, feel reassured by giving the child treatment. This is particularly true if the seizures happen frequently, every month or so, or if the seizures are tonic-clonic seizures. The epilepsy medicines, carbamazepine (Tegretol), lamotrigine (Lamictal), levetiracetam (Keppra) or sodium valproate (Epilim) are very effective in controlling seizures.

There may be research studies that your child could take part in if they have this epilepsy syndrome. Your child’s hospital doctor will be able to discuss this with you.

Information about treatments for children can be found on the Medicines for Children website.

Outlook

Nearly all children with CECTS will outgrow the tendency to have seizures when they reach puberty, and nearly always before their 16th birthday.

Children who have CECTS do not usually have learning difficulties. However, some children will have difficulties with reading and language, and might need some support in school. Most children cope well with school work.

Support 

Contact
Freephone helpline (UK only): 0808 808 3555
Website: cafamily.org.uk
Email: info@cafamily.org.uk

What is a syndrome?

A syndrome is a group of signs and symptoms that, added together, suggest a particular medical condition. In epilepsy, examples of these signs and symptoms would be things like the age at which seizures begin, the type of seizures, whether the child is male or female and whether they have physical or learning disabilities, or both. The results of an electroencephalogram (EEG) are also used to help identify epilepsy syndromes.

If you would like to know more about an epilepsy syndrome, please speak to your doctor. If you would like to know more about epilepsy in general, please contact the Epilepsy Action Helpline.

Code: 
S003.04

Epilepsy Action would like to thank Dr Richard Appleton, consultant paediatric neurologist and honorary professor in paediatric neurology at Alder Hey Children’s Hospital, Liverpool, UK for preparing this information.

This information is exempt under the terms of The Information Standard.

  • Updated April 2019
    To be reviewed April 2022

Comments: read the 2 comments or add yours

Comments

Hi, my 12 year old son was diagnosed with benign rolandic epilepsy last year. He has had 5 seizures in the past year, 3 late at night and 2 early in the morning. They usually last around 5 minutes or so and is only the one seizure at a time. I have noticed that it usually follows a stressful or busy day or more lately too much time with screens (XBox, phones etc) which I am now limiting.
The consultant at the hospital has not suggested any medication to control them as he has only had the 5 in total, which I have agreed with, however, my son is due to go skiing in the USA in April with the school. Is there any specific advise that you can give me to pass onto the school for his trip? I don't want to stop him going but of course am concerned about him suffering one whilst he is away. Thanks.

Submitted by Anna on

Hi Anna

It’s quite usual for a specialist not to prescribe epilepsy medicine when someone is diagnosed with benign rolandic epilepsy.

The most useful information for the school will be what your son’s possible seizure triggers are and what, if anything to do about the seizures if he has any.

But it might also help to discuss this with the consultant to be sure.

I hope it’s possible for him to go ahead with the trip.

Regards

Cherry  

Epilepsy Action Helpline Team

Submitted by Cherry-Epilepsy... on

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