I had my first seizure when I was around 8, I remember my mum telling me years later that they told my parents that I would grow out of it, as it was just a behaviour and attention seeking issue! Then a few years later it was epilepsy and I would grow out of that at puberty, but I didn’t it got worse. I didn’t receive the best treatment for my diagnosis until I was 16 when I was passed from a paediatrician to a neurologist. Who switched my medication from Epilim to Topamax - I’m still on it today, I’ve been on a few drugs in between, but this one is the only one that works. I was so lucky to have been referred to that doctor as he was a specialist in Epilepsy. He also got me in contact with an Epileptic Nurse, who I saw once a year to talk about health issues that coincide with epilepsy. I was fortunate to have the same lady 10 years on when I had my bubba, who I saw regularly through out my pregnancy.
I found school ok, hardest bit was in my GCSE’s as stress is a trigger and I had a few fits. Having time off affected me and my grades. When I went to college, I drank and had late nights and my seizure ‘s increased. I just wanted to enjoy the same lifestyle as my friends, but my health suffered. I realised years later that I had to make sure I got 8hrs sleep each night and cut out alcohol as they trigger my seizures, due to this my seizures slowly went down year by year and by the time I had my son at 28 I was seizure free for 2 years. Unfortunately due to the late nights and no sleep I had one, and so the process starts again.
I’ve now been seizure free for 5 1/2 years and I’ve been driving for 3 1/2 years. I’d never given up on driving, I knew I would get there no matter how old I would be. It was one of my best achievements. It made getting up after all the pain, all the bruises and broken bones worth while.
I’ve grown to love my epilepsy as it’s part of me, it’s never going away, I was born with it, it just didn’t want to say hello until I was 8, and now it’s in a long controlled sleep. I tell people about my funny seizures and the ones I’ve had in the worst places, I laugh about me waking up with my shoulder dislocated.