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Gemma Rose

Hi my name is Gemma and I suffer from myclonic and tonic-clonic sezuires.

I was in year 7, aged 11 when I had my first seizure, I was in a French lesson writing something on a interactive whiteboard and I just fell to the floor. I got rushed to the hospital as I badly bashed my head.

I had loads of hospital appoitments, loads of head scans and the consultant told my guardian to film my sezuires which must of been horrible for them, I barely went out because I was petrified of having a seizure outside.

Years went by and I ended up in foster care which is a long story, I had sezuires there too and I first had one shower falling out onto a hard tiled floor, falling off the toilet and banging my head on the corner of a tiled bath to falling down solid stairs. In the end I had to be watched on everything I did, I even ended up being scratched and brusied.

I met my partner in 2012 and I was worried what he was going to say when I told him about my epilepsy, I was worried he didn't want to know me but thankfully he did.

In 2015 me and my partner had our own place but at this time it was our second home together, on Christmas eve I got up from bed to go and get a drink, I then fell onto a cold kitchen floor and had a seizure for 15mins it was horrible because it was the first time my partner saw me have one, after that episode I ended up in hospital for 2days so they could keep an eye on me.

I got married in 2016, I nearly marked one year being seizure free until I had another one where I was so tired from working as a chef, it took it out of me and I couldn't get into work the next day as I had to rest thankfully they understood, but from my last job they dismissed me because I kept having seizures and hospital apts.

They didn't know anything about them, when I got the job they asked me 'how would they have to handle them' & 'what should they do?', I thought seriously they should've been trained this!

It's so difficult to get a job these days because as soon as you say you have epilepsy they are like 'we can't take you' and it isn't on, more businesses need to understand and be educated on what to do if someone had a seizure.

It's most important for you to have someone to talk to, and to have someone that understands what you're going through, epilepsy is a hidden disability and isn't spoken about, it's about time it should be.

I still suffer with it everyday even though it's well controlled, when cars go past me it makes me jump, sun reflecting in trees makes me have mini jerks, have bad headaches and being over tired having jerks too, it's horrible and it's makes me constantly paranoid in case something happens while I'm out. Thank you for reading my story.

Gemma Rose
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