I experienced a traumatic brain injury aged 4 with resultant physical symptoms. I was given barbiturates. Until the age of 20 I continued to experience myclonic and generalised physical symptoms; nocturnal and in the daytime. In spite of this I have always been active - cycling and treking including taking part in fund-raising events. I joined the Territorial Army [of which I was mighty proud] but was refused entry as a regular soldier following a 72 hour awake assessment at Queens Military Hospital in Woolwich.
I have always been driven and not been afraid to take on new challenges. However, there have been times when feeling fatigued, experiencing absences and nocturnal physical seizures have acted as a warning to take care of myself.
Since I became a Mental Health Nurse I have realised there is much educating to do amongst "professionals". Last year my GP and I titrated my medication [Levetiracetam and Lamotrigine] which was a high dosage, leading me to feel sedated and unable to function effectively. I also found I have Hippocampal Sclerosis which is a degenerative disease and related to Epilepsy.
There`s a bucket "to do" list on my fridge door now and Im not giving up. The more we talk and share our stories the better for all of us.