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My Story: pregnancy

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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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Planning

When I was diagnosed in 2008 my symptoms were quite severe. I wasn't able to work and day-to-day tasks were a struggle. At this point I thought I might never be...

Planning

I did not have any pre-conception counselling before I fell pregnant with my first child. Louie was a surprise!

As soon as I found out that I was pregnant I...

I was diagnosed with temporal lobe epilepsy when I was seven years old. My parents never made an issue out of it and I was always allowed to do things that I was safe to do. Until the age of 21, I...

Looking back, despite our research, we were quite naive when planning to have our first child. No one was overly concerned that I was taking sodium valproate. At 20 weeks, I had the normal scan -...

In 2010 I had brain surgery. This was actually ‘foramen magnum decompression surgery’ for a chiari 1 malformation (a bit of a mouthful).

A short while after the surgery I was diagnosed with...

Planning

When I realised things were getting serious between me and my now husband, I went for preconception counselling. I had been on Epilim (sodium valproate) pretty...

Planning

When we went for preconception counselling (in 2004), I was still at the stage of having about 40-50 petit mal seizures a month. I was on a low dose of lamotrigine...

The moment I knew I was pregnant

Surely this can’t be right!! What were the instructions again? Does that blue line really mean…?

I was expecting it to take at least...

Planning

I was aware that as and when I wanted to have a baby, I should discuss my plans with my GP and (if necessary) a neurologist. I had assumed at least a six month...

Planning

About a year before I became pregnant, I read something about the contraceptive pill interacting with my anti-epileptic drug (AED), lamotrigine. After yet another...

Tell us more about the day you had a seizure in public while pregnant and what a difference someone helping made to you.

6th March 2015 remains the worst...

I was diagnosed in 1986 with what was then called petit mal seizures. I was put on valproate. At 19 I had 3 tonic clonic seizures and had my medication changed to the then new drug Lamotrigine. A...

Verwood

My greatest achievement is a happy family. I was diagnosed with epilepsy after having a foramen magnum decompression surgery for a chiari 1 malformation in March 2010. Tonic Clonic and Absent...

It's twins

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