My Story
Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.
These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.
I was diagnosed with junior myclonic epilepsy aged 11. For purple day 2016 I created an epilepsy awareness pack and delivered it to my entire call centre. This has now been shared across all sites...  Dalgety Bay | Leanne hopes to raise £2,500 for Epilepsy Action in this year's London Marathon. Her son, Morgan, six, has severe and difficult to treat epilepsy. Morgan started having...  | Jonny’s girlfriend, Sara, was diagnosed with epilepsy in 2014 after having a tonic-clonic seizure at V Festival. Over the last 18 months, she has tried a number of epilepsy medicines but they have...  |
"2016 will be 10 years (+1 day!) since I ran my first marathon, a lot has happened since then." Lizzie has epilepsy. She had her first tonic-clonic seizure in 2010 while...  | When I was a teenager in the city of Norwich, UK, my parents struggled to understand what my mother could only term my "trouble". I remember being highly disturbed sitting upon the red leather... Coventry, UK | My name is Naho Tamura. I am an ex epilepsy patient who had recently published my patient story on American Epilepsy Journal, Epilepsia.  Tokyo |
Thanks to a story line now running on Eastenders, I now have a name for the type of epilepsy I developed 55+ years ago. I started to develop morning jerking when I was about 13. My grandmother was...  | I was first diagnosed with epilepsy when I was 11years old. Basically my epilepsy started when I hit puberty. I am now 50 years old and since then my life has been a rollercoaster re epilepsy I...  Rochdale | It started as any normal day, Quietly I was sitting, then a pain...  Newcastle Upon Tyne |
Hi my name Kaitlin,  Llanelli | I was first diagnosed with epilepsy 36 years ago, at the age of 9. This is my story. (Names of sisters have been changed)  | I was diagnosed with Epilepsy (Petit-Mal) at the age of 3 years old.  Stanmore |
I have epilepsy and sometimes I can have up to 4 a day I feel depressed and I hope tomorrow will be better.  | Samantha (21) is an opera singer. She has been registered as blind since her premature birth, and was diagnosed with epilepsy when she was 18. Samantha describes the memory and sounds associated...  Isle of Man | After recently celebrating her 40th birthday, Vicky takes us on a whirl-wind tour of her life with epilepsy. Her journey has involved Shrek, an elephant, an amazing amount of hair and make-up, and...  |
How do you help your seven year old nephew, who has been recently diagnosed with nocturnal epilepsy? Discover Tori’s answer, as you see what nocturnal epilepsy looks like. [People with nocturnal...  | Ruth (31) is a single parent to a young daughter. Her frequent daily seizures can leave her feeling tired, confused and occasionally bruised. But Ruth’s video shows her smiling warmly as she ‘...  | During the 2014 Purple Day campaign, Megan (18) shared a photo of her black eye. She received the injury during a seizure – but can’t be sure how it happened. Today, Megan is enrolled at...  |
Maggie (26) has spent the last few months working to better educate people about epilepsy. In the process, she has regained the confidence that was almost taken from her, when two strangers...  | During the last year, Laura (22) has graduated from university and started her career as a soprano and music tutor. In this short video, Laura shares her amazing success as a classical singer,...  | Jimi was diagnosed with epilepsy when he was three years old. In this short video, watch Jimi rush about busily, in the way that children do. His mum talks about the impact that his epilepsy has...  |