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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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At the age of 1 and a half I was diagnosed with absence epilepsy.

Throughout my entire childhood I grew up with people thinking I was ignorant and giving me nasty looks or calling me fat...

Swindon

At the age of just seven years old I was diagnosed with chronic epilepsy.

Throughout the years it progressed and got worse. My right side weakened as I got older, they found a piece of...

Tamworth NSW

Sukhdeep Samra.

I was diagnosed in 1991 at the age of 8. I have had epilepsy for 30 years.

I have had the same specialist for 30 years who has helped day in day out along side the...

Leicester

Being diagnosed back in 2007 made me feel there was very little support available for reading about personal encounters of epilepsy, back then I was 18 and now, at almost 32 I'm living as almost 3...

Hertfordshire
Hi, I've written this article before and wondering if anyone else has had the same experience. My EP came on 28 years ago and have tried most med's but no joy. I now have afternoon naps which I've...
Cheshire

My name is Ella and I'm 17 years old. I'm a chronic illness advocate, fundraiser and motivational speaker.

I started having absence seizures when I was a toddler, which caused me to miss a...

Kent

When I was born I was breach and suffered brain damage due to forceps delivery. My parents were told I would not live due to suffering Sub-Dural Brain Haemorrage or would be mentally handicapped...

York

When I was 12 I was on holiday with my family in Turkey.

On the first day I went back to the room to get some more sun cream and I went to sit on the end of the bed then the next thing I...

Wirral

When I was 14 I was constantly having seizures I was so confused at the time because so many doctors were telling me so many different things when the doctors finally told me I have epilepsy I...

London

I was diagnosed with juvenile myoclonic epilepsy (JME) when I was about 20 years old. Since then, I have been prescribed several anti-epilepsy drugs to help control my seizures. The first drug I...

Soooo ... 11 years ago, I woke up late for work and I was tired and was ironing my uniform when suddenly my tummy felt weird and all of a sudden I had De-Ja-Vu.

These continued every 3...

Watford

Life is what happens when you are busy making plans.. (or cancelling plans it seems at the moment)
Christmas and New Year is often a time most come to reflect and that doesn't exclude me....

I’m Amy, I’m 18, and I’m from Southampton. My epilepsy journey has been a roller coaster, I will tell you that!

At 14, one day out of nowhere my eyes went into the back of my head. I was...

Southampton

I have had epilepsy since I was 11 for grand mal seizures and after being on Sodium Valproate most of my life, I was having trouble conceiving . I was very naive - the obstetrician advised me to...

Just like anyone else during these challenging times, I’ve been worried about getting the dreaded coronavirus.

Although epilepsy hasn’t been officially classed as making people more ‘at...

I am the youngest in my family. I am registered epileptic despite I have not had a fit for over a year now.

I used to attend to a local group for people that are epileptic once every first...

REDHILL ARNOLD NOTTINGHAM

Fraizer is 7 and was diagnosed with epilepsy in September this year. He has focal onset epilepsy with focal to bilateral tonic clonic seizures. “He had his first seizure in May and it absolutely...

Charlie, my son, was 4 years old when he had his first seizure.

He was eating his breakfast when he dropped to the side, giggled and his right arm extended. I couldn’t believe what I was...

Worthing, West Sussex

I developed epilepsy in my early twenties when I had a small seizure while driving. I went to hospital to get checked out and was diagnosed.

Further tests showed I’d a partial seizure and...

Northern Ireland

Victoria, 30, from Londonderry, had her first seizure when she was 13 years old, and was diagnosed at 14.

She has tonic clonic seizures, absence seizures as well as myoclonic jerks. At the...

Londonderry

Sezuires began with a bang, 8 in 12 hours remember nothing of it ,apart from soiled clothes then waking in A&E, took year to diagnose.

Daily sezuires, gone from Senior Social Worker and...

Pontypridd,wales

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