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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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I was first diagnosed with epilepsy at the age of 14.
I was terrified when I came round in the ambulance, convinced I was going to die.
The first anti-convulsant I was put on was...

"I was at the gym a few weeks ago doing an early morning spin class with my manager from work. At some point during the workout I realised I had no idea of how I got to the gym and couldn't recall...

Flintshire

Hi I’m Hannah,

I had my first seizure at 11 years old, and after a few more episodes and an EEG was diagnosed with photosensitive epilepsy.

Since then I’ve been on medication,...

Hi, my name is Nicole, I am 17 years old. I have suffer from photosensitive epilepsy for almost 12 years now.

I had my first seizure when I was 6 to 7 years old in elementary school. I kept...

Hi, my name is Lauren. I have a wonderful little boy named Albie who was diagnosed with Dravet Syndrome in September 2018 (Just before his 1st birthday). Albie was having lots of prolonged...

I began having full seizures when I was 27 years old, about 15 years ago, following a bout of flu and resulting sinus infection. The seizures happened in my sleep and lasted for up to a minute,...

My name is Alice Jackson, I am 18 years of age. I have cerebral palsy and suffer from tonic clonic seizures.

I was first diagnosed with epilepsy at 18 months, I had my second seizure...

Hi, I'm Anja Warneke, from Bremen in Germany, and I want to write about my epilepsy.
When I was seven years old had a brain injury. It happened in a village on the cyclist way beside the...

Ben King nominated his wife Rachael for everything she does to raise awareness about epilepsy. Their three children all live with the condition. Their eldest son Jenson, seven, was diagnosed with...

Aislinn Carlile volunteers for the Epilepsy Action Ballynahinch coffee and chat group in Northern Ireland. Located in a rural area, the group gives people affected by epilepsy a much-needed...

Nansi Thomas is five and has temporal lobe epilepsy, having several seizures day and night. She was finally diagnosed at the age of three after a long time of suspected epilepsy.  Nansi’s...

Dr Daniel Hindley works at Bolton Foundation Trust. A paediatric consultant and clinical lead in community paediatrics, he has interests in childhood epilepsy and neurodisability...

Ladies Circle is a networking organisation for women aged between 18 and 45, founded in 1936. The friendship group runs around 120 different clubs nationwide, and is all about having fun,...

Bartuf is a family owned Yorkshire business founded in 1995 and based in Armley, Leeds. They are one of the UK’s leading designers, manufacturers and suppliers of innovative retail display...

Jenson, aged seven, has absence seizures on a regular basis, as well as tonic clonic, focal and atonic seizures. William, five, not only has absence, partial and tonic clonic seizures but also...

Francesca was 14 when she had her first seizure out of the blue, on a sailing holiday in France.  She has multiple types of seizures, including tonic-clonic, myoclonic and absence seizures....

Amrit’s epilepsy story began when she was just three days old. When she was little doctors said she had myoclonic jerks – this was when her left arm or leg would twitch for no reason. Then she...

I had my first seizure when i turn 16, i didn't know what's going on with me the second seizure change my life! when i was opening door to go ou with my gf i get seizure fold to ground, the fold...

I first had my first seizure at 3 years old wasn’t diagnosed till I was 18. Im now 28 had 4 comas and 2 TIA’s and 3 cardiac arrests but epilepsy has taught me a lot we are not defined by are...

I contracted meningitis back in August and have since acquired epilepsy which at 40 year old has been a difficult thing to come to terms with. I have tonic seizures of which i have had five and...

I was 11 when I was first diagnosed with Epilepsy. I am now 13 and we don't know for sure what triggers cause it. It is hard because sometimes I lose some memory so it is a struggle around tests...

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