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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

Most recent | Most read

Volunteering is not always about spending a day helping out in an office or at a charity fundraising event. It can also be about giving your time to speak out about an issue and make positive...

Lincoln

For Volunteers' Week 2018 we are celebrating the fantastic people that help us make a difference every day. Katie is from Leeds. She has been volunteering for Epilepsy Action for 2 years in the...

Leeds

I am going to take the plunge (literally) and do a skydive in memory of my brother. He died from SUDEP 7 years ago now and I felt it was time I gave fundraising a go. My brother Nathan was only 21...

Telford

I mainly have focal seizures but used to tonic clonic seizures too. However, they seem to have gone away now. The difficult thing for me is that my seizures happen with no aura, so I have no...

Guildford, Surrey

I’m Raphael and I’m a normal happy 6 year old rebel. At times, when I'm asleep, I suffer from nocturnal seizures.

My 8 year old sister annoys me on a daily basis but are truly the bes of...

London

My epilepsy started when I was 40 year old. I had a professional job supporting pupils with behaviour and attachment issues in both Mainstream schools and Pupil, Referral, Units. The epilepsy...

Bradford

I had my first seizure when I was 18 months old. I then had a seizure aged 8 and one a year later. I was diagnosed with epilepsy and, later on, it transpired that I had photosensitive epilepsy too...

Manchester

As it is National Epilepsy Week 14th - 20th May I have been asked to write a few words about Epilepsy by my friend Louisa. More because she is fascinated by it,but also bcause of what Sky is doing...

Sheffield

My son had seizures for about 6 years. He lost his licence twice. He never got it back. He would not admit to still having seizures. I do believe most were at night. He would often look tired and...

suffolk

I began having absence seizures when I was 16. I didn’t know that’s what they were until I started driving. When I have a seizure I become very disorientated, I stare and they make me drool. I get...

I was 18, at the time, and working in Llanelli, but living in Swansea. I had not passed my driving test, so the only way I could get to work, was by motorbike. Anyway, this night, I had a terrible...

Swansea

I was diagnosed in 1986 with what was then called petit mal seizures. I was put on valproate. At 19 I had 3 tonic clonic seizures and had my medication changed to the then new drug Lamotrigine. A...

Verwood

Hi, my name is Darren and I am 56 years years of age. I became epileptic after a head injury during my military service with the Parachute Regiment a career that I loved but was sadly cut short...

Tamworth

I had my 1st seizure back in 2012 at the time i was getting ready to start my last semester in college. The class i needed was in a city 30 minutes away and was unable to drive for 6 months....

Louisiana

Hi there
My 28 year old daughter who is mentally many years younger than her actual years was diagnosed when she was four years old.

She takes various seizures such as Myoclonic Jerks...

Glasgow

I was diagnosed with absence epilepsy (then known as petit-mal) when I was 11 years old.

My parents thought I was going to be a difficult teenager as I would look like I was bored when they...

Manchester

Epilepsy is a weird one for me. I’ve had grand-mail seizures since childhood, but I’m very lucky to only have them a few times a year if I manage my lifestyle. I have fits if I don’t sleep, this...

Leeds

Two weeks...
Two weeks... that is how long I've been diagnosed with epilepsy.
It has been a strange couple of weeks. But nothing has changed; I still needed to hand in my dissertation...

Bristol

In August 2014, when I was 25, I had a tonic-clonic seizure whilst driving on the M62. Luckily noone else was involved and apart from a few bumps and bruises I was fine. My car, however, was...

Selby

I was like most young people, drinking and partying. It was my favourite thing to do, longing for the weekend to come and going clubbing.
Although I was drinking excessively, more than I...

Hove

I’ve read so many inspirational stories from people affected by epilepsy, many in such awful ways. Mine is very different…
I was diagnosed with temporal lobe epilepsy in April 2014. I don’t...

Bourne, Lincolnshire

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