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of everyone affected by epilepsy

My Story

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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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Mine looks like the train. Diagnosed last September I still hate not being able to drive. Today felt like an achievement as I got a train and a taxi to a conference. This time a year ago I wouldn'...

Liverpool

Fanci is a Personal Trainer, NPC Bikini Competitor, volunteer cheer coach, model, and most importantly mother of 2 beautiful girls and wife for over 13 years. She has had epilepsy since she was 10...

Fort Knox , KY

My epilepsy looks like this.....

I have had brain surgery to try and stop my seizures, but unfortunately it didn't quite stop my seizures, and I still take epilepsy medicines.

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My epilepsy looks like this......

a basket of #Purpleday presents for my school teachers. The Epilepsy Action first aid cards will tell the teachers how to help me when I have a seizure at...

Northern Ireland

Radio 4 appeal banner

Sunday 2 March 2014

...

My name is Amy Bassett, I am 22 years old, I live in South Wales, I study Psychology with The Open University and I have had Epilepsy for about 4 and a half years now. In July 2013 I ended up in...

Pontypridd

Bupa Great North Run 2013 (1.55.37)

Darlingtion

After my writers block unblocked out I came from my state of epilepsy which I have had for some 37 years, now I'm a poet and I know it!

Wondering aimlessly
through my mind
...

Cornwall

I was diagnosed with fractional Epilepsy 18 years ago. My epilepsy has changed a lot over the years having good periods and bad.

My consultant tried many different combinations of anti...

Newcastle Upon Tyne

Having Epilepsy for sixty five years I went to writing school after early retirement
learnt like many with disabilities by teachers my main aim in life, that was to
write poetry and...

BRAMPTON CUMBRIA

My name is Nils and I suffer from complex partial epilepsy.

It doesn't stop me from my love of running. I have just completed the Leeds half marathon and came 10th in my category, 63rd...

Skipton

Although now cured by neurosurgery, Tristan suffered from uncontrollable seizures for much of his life.

Tristan feels that his greatest achievement was his perseverance until he found a job...

Coventry

In my early teens I had suffered with epilepsy and had a fear of what would happen at school that day. With being on medication and cleared for 3 years I have grown in confidence by giving...

Staines

I am delighted to say that we, as TeamMAX have just completed the Epilepsy Action Grand Canyon Trek in memory of my 22 month old son Max. Max tragically died in June last year due to Sudden...

Wimborne, Dorset

keeping the happy personality God gave me even though my seizures can't be controlled. Mum loves to hear how I help people to smile!

Lisnaskea N.I

For many years I have experienced bouts of depression. I always described it as trying to climb out of a black hole without a ladder!
I feel that on a personal level one of my greatest...

godalming

I sometimes find it very difficult to understand how other people are feeling because of my autism but I feel that one of my greatest achievements is having empathy for my mother when she lost her...

Godalming

My recent achievements is getting a job at the Belmont Drop-in centre. I start at 10 am finish at 12 I have a drink before I begin and wash my hands before preparing the food. I wear a hat and...

Godalming

Despite have meningitis at 8 months, which left me with right temporal lobe epilepsy, I have graduated three times (Hons Degree Chemistry, MSc Waste Management and PhD). I underwent a partial...

Stewarton, Kilmarnock

Choosing the high school I wanted to go to because I really felt I'd be happy and looked after, despite the fact that none of my friends from primary school would be going to that high school with...

Wigan

Getting into College!

Over the last year my Epilepsy has got a lot worse making life a lot harder. Despite the Bad List being rather long I have achieved a lot of good things over the last...

London

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