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of everyone affected by epilepsy

My Story

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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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Never being held back! When I was diagnosed with epilepsy, aged 9, I was given a list as long as my arm as to the activities that were deemed "unsafe". Academically, my epilepsy was expected to...

Brighton

to keep going.I was diagnosed with epilepsy when I was thirteen years old.

Since then I have successfully achieved many goals. These include:
taking part in an eight week...

One of my greatest achievements is raising awareness and sponsorship money for people with epilepsy.I competed in the Woodhall Spa 10km road race last year and raised about £150 for the Epilepsy...

Horncastle

running the 10k for the 6th year running. i just love running and this year i beat my personal best time and did it in 1 hour 36 minutes and 6 seconds. I did it for 2 charities i love - epilepsy...

Rochdale

getting good grades and living a happy life.

I am 15 years old, and I have had epilepsy for 9 years.

Through those 9 years I have learnt that it can be hard to live with when your...

Good grades and happiness

I was diagnosed with epilepsy aged 23. I lost my license for 5 years as unfortunately I kept having seizures around 10-11 months after the previous one. I live in Cambridgeshire in a small village...

Radio personality

We are proud parents of daughter Lucy who is 6 today. She was born with Hemiplegic Cerebral Palsy and developed Epilepsy at 2 yrs old. She is a bubbly, talkative little girl and has such a can do...

Ashford, Kent

Running the Royal Parks Half Marathon for Epilepsy Action in 2009 - despite having seizures every few weeks and being rather heavy for a long distance runner, it really was an amazing feeling to...

Forest Hill

being able to read as good as my school friends.

I'm eight years old, but this time last year I struggled with my reading and was 2 years behind my class mates.

After lots of hard...

I'm now an excellent reader

Becoming a fully qualified counsellor and running my own busy private practice despite never being able to complete my A-Levels or Degree due to returns of my epilepsy.

Having epilepsy made...

Cardiff

becoming a fitness instructor despite having had a brain tumour, stroke and epilepsy which all mean I have a very poor short term memory and balance. I started the course just 7 months after the...

Yarm

the way travel saw no boundaries after my temporal lobe surgery. Before the operation I had no confidence to take a bus trip to Chester alone. Within a year I not only went to Chester regularly...

Birkenhead

I have many, I'm married to a wonderful man,Carl,and I'm mum to a healthy,happy and confident 12 year old daughter Jodie. I grew up knowing a little about epilepsy as my aunty had developed it as...

Burton

...being elected the MP for Blackpool and North Cleveleys. I am in a unique position of being able to highlight a variety of disability issues, and I hope this means that groups of people whose...

Paul is a Member of Parliament

Studying for a Fine Art (BA Hons) at Manchester School of Art! Lots of hard work and I've achieved all I set out to do and now I'm just waiting for our degree show and that graduation day. I've...

Greater Manchester

Despite having 50-60 attacks a day I have worked in full time employment since I was 22 in managerial and executive PA roles, gaining the respect of my colleagues who see me for my skills not my...

Derby

Made it down the aisle without my walking stick, raised £90 plus Gift Aid at my wedding reception and began a blog advocating autism and epilepsy awareness and education - while still proving that...

Chelmsford

Passing my driving test after having to wait years to have my epilepsy controlled!

Belfast

Swimming Coniston Water in the Lake District. Although i swam this just over 20 years ago it was a great achievement for me at that time. My epilepsy never stopped me from doing Long Distance...

Scarborough

In my professional life my greatest achievement would be working to and obtaining my PhD in neuroscience. This allowed me to work in an Brain research institute specialising in epilepsy research,...

Windsor

To be seizure free for 7 years and bring up two daughters on my own for 6 of those years.

Kent

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