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My Story

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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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My name is Krystal Johnson
And after my motorbike accident 2014, when a women thought she was Lewis Hamilton pulled out on me and my 1000cc motorcycle...I saw white and told the universe to...

Bromley

It’s not a particularly long story but its one I want to share. My whole life has been spent active doing sports and competing and generally living a healthy lifestyle, Ive always been one who...

Buckinghamshire

So.... my story... well it’s not very interesting or special but has had a large effect in my life not just physically but mainly emotionally.

When I was about 13 years old (I’m 18 now) I...

Birmingham

You have so many plans for the future and when they gradually start to fall apart you wonder if you can carry on.

I had my first seizure when I was 27. I'd started temping as an...

Andover

A mother's wish

At the age of 2 years and 7 months my daughter, who has quadripledgic spastic cerebral palsy had her first seizure. I honestly thought we had escaped the epilespy with her...

Colchester

After being diagnosed at 16 years old, 8+ seizures a day - never could i thought I'd have the life i do now!

Since fantastic treatment at NNUH im approx 8 months between seizures which i...

Lowestoft

Hi, my name is Rebecka and I have grand mal seizures.

My epilepsy, I suppose journey, started in junior high school. I just remember one day when I was 14, alone at home, everything went...

My first seizure was on my 9th birthday! (Fabulous timing) I had a few more grand mall seizures but my epilepsy was mainly under control until I hit my teen years.

By the time I was 15 I...

Merthyr Tydfil

I was diagnosed with epilepsy at age 12 in 2011. I've had epilepsy for 6 years. When I was first diagnosed I began having Tonic Clonic Seizures (which is a type of generalised seizure which...

Lisburn

I was diagnosed with a epilepsy at the age of 7, a normal day I was sitting watching TV eating a baby bell and it happened. Full blown seizure. Never have in ever touched a baby bell since, even...

Surrey

I was 13 years of age when I had my first seizure. I remember waiting to get on the bus after a sleepover at my friends house, full of happiness after a girlie night. When all of a sudden I was...

Manchester

i was diagnosed with absent seizures when i was 4 my teacher as the first one do noticed them, i am now 14 and are still having them and they are getting a lot better i used have them for 15-20...

andover

I had my VNS implant removed and replaced with the new / smarter one the operation was quick and straight forward and unlike first operation no problems as I came around and was sent home same day...

Hull

I have been taking Epilim 500mg twice daily since the age of 13. I have 4 sons. My eldest is 28 and the doctor believes that he has 'Marfans Syndrome ' but he didn't complete the tests, hence a...

Wickford Essex

What I wish I could still say...

I've written here many times throughout the last 6 years but not so much recently because I'm fine and seizure free but actually today I realised there are...

Halifax

Today is the day I can no longer say ‘…but it’s okay, I’m seizure free’ when explaining my condition.

I have been diagnosed with epilepsy for over 7 years. I am the first one to make light...

Bournemouth

I had a difficult birth and I was born with on shorter leg to one foreign parent and one not .
When I was three I was struck by a speeding tow truck in a ghetto in anchorage alaska off...

Juneau ,Alaska

I had my first seizure about 7 years ago, when I was 21. I was in my last year of university, and it scared my flatmates and me. None of them had seen a seizure before, but luckily they did the...

Chessington

My name is Elle and on the 18th November 2010 at 9:23PM I had my first tonic clonic seizure . Fast forward to September 16th , after an MRI and 2 EEGs and around 50 more seizures , I got my...

Wallington

I've always wanted a normal life. To pursue my passion, to write stories, to create music, to finish my college and to have my dream work. I want to be a normal person. I was 15 years old when I...

Laguna, Philippines

I was only young teachers always gave me a hard time not all of them but some I was only 6 and already felt isolated. Mum kept getting told "something isn't right" to us I was healthy. But...

Newquay

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