Imagine for a second you had to tell a stranger about your epilepsy. Actually, not one person. Maybe hundreds of strangers. And not one by one. All at once. Hundreds of people are looking at you and you are centre-stage telling them about your epilepsy.
Maxine has Dravet syndrome, a rare and severe form of epilepsy. Her mum Patricia tells Epilepsy Today about life with the condition, from diagnosis and treatments, to finding independence
It’s not a surprise that if you have never come across a particular medical condition, you are unlikely to know much about it. Particularly if it’s a rare one. It’s actually quite logical really.
And epilepsy is notoriously one of those conditions which is quite poorly understood by the general public.
Epilepsy Action has long been celebrating the superstars of epilepsy. These are the people who work tirelessly to help people living with the condition.
The European Medicines Agency (EMA) held a public hearing on medicines containing valproate in London on 26 September.
The public hearing was part of a safety review by the EMA into the use of sodium valproate in women who are pregnant or of childbearing age.
The International League Against Epilepsy (ILAE) has announced some new names for seizures and some new seizure types. Epilepsy Action advice and information services officer Grace Haydon explains what the changes are and the reasons behind them
Epilepsy Action’s Purple Day survey has shown just how many of us feel lonely, isolated, stressed and anxious, even when our seizures are controlled. We show some of the survey results and offer suggestions on fighting some of these challenges
The Epilepsy Action Volunteer Awards 2017 took place on 23 February at the Leeds Civic Hall. The charity’s annual awards ceremony celebrates the people who generously give up their time and energy to help others living with epilepsy.
Sodium valproate is a very effective epilepsy medicine for many people. However, it carries a risk when taken during pregnancy and three epilepsy charities believe more women need to be made aware
After getting diagnosed with epilepsy, Megan thought there was no one else like her. But when she attended her first Epilepsy Action coffee and chat group with her mum, it was like a weight was lifted
