For over 10 years, on 26 of March we have marked Purple Day, the international epilepsy awareness day. This is always a powerful day, full of unity, inspiration and information. It allows people to show their support for everyone living with epilepsy, share their experiences of the condition and raise some money and awareness.
Finding out you have epilepsy is scary at any age. For young children and their families, it can be terrifying.
For Purple Day 2019 Epilepsy Action is aiming to help more children and families come to terms with epilepsy.
Purple Day is an international event held on 26 March every year to raise awareness and funds to help people living with epilepsy.
Francesca’s epilepsy was very hard on her during her school years. Having become good at overcoming challenges, she decided to take on another one – get fit and run Tough Mudder
Epilepsy Action senior policy and campaigns officer Sam Mountney provides an update on the current situation with cannabis-based medicines in the UK
"Medicinal cannabis is never far away from the news at the moment. We said we’d follow this issue closely on behalf of the epilepsy community so here’s our take on what’s happened so far and what is happening next.
Like any other medicines, epilepsy medicines carry their own potential for causing side-effects in people taking them.
Imagine for a second you had to tell a stranger about your epilepsy. Actually, not one person. Maybe hundreds of strangers. And not one by one. All at once. Hundreds of people are looking at you and you are centre-stage telling them about your epilepsy.
Maxine has Dravet syndrome, a rare and severe form of epilepsy. Her mum Patricia tells Epilepsy Today about life with the condition, from diagnosis and treatments, to finding independence
It’s not a surprise that if you have never come across a particular medical condition, you are unlikely to know much about it. Particularly if it’s a rare one. It’s actually quite logical really.
And epilepsy is notoriously one of those conditions which is quite poorly understood by the general public.
Epilepsy Action has long been celebrating the superstars of epilepsy. These are the people who work tirelessly to help people living with the condition.
The European Medicines Agency (EMA) held a public hearing on medicines containing valproate in London on 26 September.
The public hearing was part of a safety review by the EMA into the use of sodium valproate in women who are pregnant or of childbearing age.
