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of everyone affected by epilepsy


Prescription from UK specialist made for nine-year-old whose cannabis-based medicine was confiscated at the airport

12 Apr 2019

A nine-year-old girl, whose cannabis oil had been confiscated at the airport on Saturday, has been given a prescription for the medicine from a UK specialist. 

Teagan's cannabis oil had been confiscated at the airport after her mother Emma Appleby brought the three-month supply into the UK illegally from the Netherlands on 6 April.

Some epilepsy medicines “cannot be stockpiled”, NHS list reveals

9 Apr 2019

On 3 April, BBC Newsnight reported that some medicines, including some for epilepsy, bipolar disorder and neuropathic pain, cannot be stockpiled.

This comes after the Health Secretary Matthew Hancock said in parliament that medical suppliers had been asked to stockpile an extra six-weeks’ worth of medicines. This is to ensure medicine supply continues in all Brexit scenarios.

Changes to prescribing rules around pregabalin and gabapentin following reclassification as controlled medicines from 1 April

13 Mar 2019

Epilepsy medicines pregabalin and gabapentin will be reclassified as controlled medicines under the Misuse of Drugs Act 1971 from 1 April 2019, NHS England has said.

This means there will be stricter legal controls over these medicines to prevent them from being misused, causing harm or being sourced illegally.

Epilepsy not a priority in NHS Long Term Plan, epilepsy organisation says

10 Jan 2019

Epilepsy organisation Epilepsy Action has said it is disappointed with the lack of priority given to epilepsy in the NHS Long Term Plan.

The Long Term Plan was published on 7 January, detailing how the NHS intends to move healthcare forward over the next 10 years.

In a post, Epilepsy Action highlighted that while epilepsy is mentioned in the plan, it is not made a priority.

Epilepsy medicines not part of government plans to let pharmacists ration medicines in case of no-deal Brexit

8 Jan 2019

The government has said epilepsy medicines will not be included in plans to allow pharmacists to ration medicines in the case of a no-deal Brexit, the Sunday Times has reported.

In December, the government set out plans to avoid shortages of medicines, which it called a “serious shortage protocol”. This would be in the event that no Brexit deal is made and the UK leaves the EU without one.