We exist to improve the lives
of everyone affected by epilepsy


EMA public hearing on valproate-based medicines open for applications from EU citizens

14 Jul 2017

The European Medicines Agency (EMA) is holding a public hearing on medicines containing valproate on 26 September 2017 at its London offices.

The EMA assesses and oversees the safety of medicines in the EU. The announced public hearing is part of the EMA’s review into the use of valproate-based medicines in women who are pregnant or of childbearing age.

Glasgow woman with epilepsy breaks cycling records to raise epilepsy awareness

6 Jul 2017

Ultra-marathon cyclist Katie Ford has broken 2 cycling world records, pending verification, and 2 British records to raise awareness of epilepsy.

On 2 July, Katie, 31, took to the Sir Chris Hoy Velodrome in Glasgow’s Emirates Arena to try to break the 6, 8 and 12-hour indoor track cycling world records. Katie broke two world records for 6 and 8-hour track cycling, pending verification.

Trial finds cannabidiol may successfully reduce number of convulsive seizures in children and young adults with Dravet syndrome

25 May 2017

A new study has found that cannabidiol could be an effective treatment for people with Dravet syndrome.

Cannabidiol comes from the cannabis plant. It does not contain the part of cannabis that gives a ‘high’ – the psychoactive part.

Man who sent flashing ‘GIF’ image on Twitter to US political journalist with photosensitive epilepsy has been charged

27 Apr 2017

Last month, a man accused of sending a tweet with a flashing image to a US political journalist with photosensitive epilepsy was arrested. John Rayne Rivello, 29, was charged with criminal cyber (online) stalking. If found guilty, Mr Rivello could face a sentence of 10 years in prison.