The UK Home Office has returned 12-year-old Billy Caldwell’s cannabis oil epilepsy medicine after he was taken to hospital on Friday 15 June. This was after Billy’s medicine was confiscated at Heathrow Airport on Monday 11 June.
Billy, from Castlederg in Northern Ireland, has a severe form of epilepsy and has previously had up to 100 seizures a day.
The Belfast Trust has called in 2,500 patients for a review after an investigation into the work of a consultant neurologist.
Concerns were raised about Dr Michael Watt’s treatment plans and diagnoses by other doctors. After this, his work was investigated by the trust and the Royal College of Physicians.
This resulted in 2,500 people who received treatment from Dr Watt being asked to come in for a review. They were being treated for a number of conditions, including epilepsy and MS.
An inquest into the death of a 36-year-old man with epilepsy found that he died of natural causes.
Danny Tozer had epilepsy, autism and a learning disability. He was a resident at a supported living home when, in 2015, he died after having a seizure. The coroner concluded that Danny died from sudden unexpected death in epilepsy (SUDEP).
The Medicines and Healthcare products Regulatory Agency (MHRA) has today changed the licence for valproate medicines in the UK.
Sodium valproate must no longer be prescribed to women or girls of childbearing potential unless they are on the pregnancy prevention programme (PPP).
The Brexit Health Alliance has warned that people may face long delays in getting new medicines as a result of Brexit. Research cooperation and access to clinical trials may also be affected, the organisation said.
The alliance is urging Brexit negotiators to prioritise patients and public health during the second phase of negotiations.
Teresa Colvin and Connor Sparrowhawk both died at facilities run by the trust in 2012 and 2013. Connor, who was 18, drowned in the bath at Slade House in Oxford, following an epileptic seizure.