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Almost one-fifth of women taking sodium valproate for epilepsy still not aware of risks in pregnancy, survey shows

22 Sep 2017

Almost one-fifth (18%) of women taking the epilepsy medicine sodium valproate don’t know the risks this medicine can pose during pregnancy, according to the results of a new survey.

More than a quarter (28%) of the women currently taking sodium valproate said in the survey that they had not been informed of the risks of this medicine in pregnancy.

Southern Health Trust pleads guilty in the case of Connor Sparrowhawk

21 Sep 2017

Southern Health NHS Foundation Trust has pleaded guilty to breaching health and safety law in the case of Connor Sparrowhawk who died at a facility ran by the trust in 2013.

A representative of the trust attended Banbury Magistrates Court on Monday 18 September for the criminal prosecution hearing brought forward by the Health and Safety Executive (HSE).

Disability Benefits Consortium report finds process for claiming Personal Independence Payment (PIP) ‘not fit for purpose’

21 Sep 2017

The Disability Benefits Consortium (DBC) has concluded that for many people, how Personal Independence Payment (PIP) works is “not fit for purpose”. The DBC has based its conclusion on a survey of 1,730 people who have claimed PIP.

The DBC is made up of a group of over 80 charities, including Epilepsy Action, that represent people who rely on disability benefits.

EMA public hearing on valproate-based medicines open for applications from EU citizens

14 Jul 2017

The European Medicines Agency (EMA) is holding a public hearing on medicines containing valproate on 26 September 2017 at its London offices.

The EMA assesses and oversees the safety of medicines in the EU. The announced public hearing is part of the EMA’s review into the use of valproate-based medicines in women who are pregnant or of childbearing age.

Glasgow woman with epilepsy breaks cycling records to raise epilepsy awareness

6 Jul 2017

Ultra-marathon cyclist Katie Ford has broken 2 cycling world records, pending verification, and 2 British records to raise awareness of epilepsy.

On 2 July, Katie, 31, took to the Sir Chris Hoy Velodrome in Glasgow’s Emirates Arena to try to break the 6, 8 and 12-hour indoor track cycling world records. Katie broke two world records for 6 and 8-hour track cycling, pending verification.

Trial finds cannabidiol may successfully reduce number of convulsive seizures in children and young adults with Dravet syndrome

25 May 2017

A new study has found that cannabidiol could be an effective treatment for people with Dravet syndrome.

Cannabidiol comes from the cannabis plant. It does not contain the part of cannabis that gives a ‘high’ – the psychoactive part.

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