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of everyone affected by epilepsy

The Pregnancy diaries

These diaries were written in 2012 by mums with epilepsy. Lots of mums-to-be have found them really helpful and reassuring.

For up-to-date information about epilepsy and having a baby, go to Epilepsy Action's advice and information pages.

Written by mums with epilepsy for mums and mums-to-be.

Pregnancy is an amazing, life-changing, exciting, but I-really-want-this-final-week-to-pass-quickly, kind of experience! Having epilepsy? Well that’s just another thing to think about alongside choosing baby names, test driving prams and morning sickness.

Read the pregnancy diaries onlineIf you’re a mum or mum-to-be with epilepsy and you want to know how other mums with epilepsy coped, then our mums could help you. Catherine, Clair, Faye, Ingrid, Jennifer, Nicola and Rebecca have opened up their personal pregnancy diaries to give you a little support, whenever you might need it. The Pregnancy Diaries are written by mums with epilepsy for mums and mums-to-be with epilepsy.

Good luck and best wishes,
Nicole and Louise (Epilepsy Action) Catherine, Clair, Faye, Ingrid, Jennifer, Nicola and Rebecca.

Meet the mumsThe baby plannersThe moment I knew I was pregnant

Meet the mums

The baby planners

Oh baby! The moment I knew I was pregnant

12 weeks How I copedUK pregnancy register

Smiles and trials of the first twelve weeks

How I coped when things went wrong

The UK epilepsy and pregnancy register

Money bx saversMy seizures, my pregnancy, my worries

Antenatal tests and scans

Money box savers 

My seizures, my pregnancy, my worries 

Partners in pregnancy and birth Preparing for the birthSix steps for success 

Partners in pregnancy and birth 

Preparing for the birth 

Six steps for success when writing your birth plan 

My labourI'm the mummyOne mum to another

My labour 

I'm the mummy

One mum to another - our advice for you 


Comments: read the 1 comments or add yours


I'm so pleased to see that there is now help available for mums to be and new Mum's, I came home far to early from hospital due to lack of understanding.
My seizures started again 6 months after I stopped breast feeding, my daughter. I had been medication and seizure free for 13 years before this seizure, I was then put back on medication, we decided that as I had always wanted 2 children, we would wait until our daughter was 2yrs old before we tried again, so I stayed on medication and all went well, but again 6 months after I stopped breast feeding I had another series of seizures, my medication was changed and I was seizure free for 8 years. For the last 4 years I have been suffering more and more seizures, my son was 8 when I just keeled over on the walk to school, he made me safe and called an ambulance, I have always been very open about my epilepsy and all the drugs I have to take, so he knew what was happening, but it causes him worry every day. Despite medication I've had a few more ambulance rides, my family and friends are amazing, as are the local community.
Being a mum with epilepsy requires on going support, it's often hard to get, as are neuro appointments. I have every praise though for the pastoral support given to my children at school and their suggestion for my children to join young careers, as a family we have always just got on with things, so we didn't even know that these things existed, until that first ambulance ride!
Motherhood is amazing, it's just made a bit more difficult when you have epilepsy and the side effects that go with the drugs, my advice, be open with everyone, especially your children and if you feel you need more help, ask for it and push for it. I was scared to do this, 15 years on, I wish I had asked and pushed for additional help.

Submitted by Anna on