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Everyone’s epilepsy story is unique, and sharing your story helps others know they are not alone.

These are inspiring stories; of being diagnosed, over-coming challenges, fundraising and much, much more. Please share your story too.

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My first seizure began somewhere around 2013.

It was a hot summer day, around 12pm, at a seafood restaurant, that my friends saw me lift the table throwing all our food to the floor and...

Texas

If only
If only you could be in my shoes and feel my pain

If only I could take my children out and not have to wait

If only I didn’t have this dizziness and shakiness and...

Bicester

I started having seizures in 2015, when I was at uni studying marine biology. At the time it put a downer on things, as it stopped me from being able to dive. I thought I was never going to become...

I posted this at another article and thought I could put it here too.

The comment in the article said that epilepsy medication rarely effects suicide thoughts but I think that is false and...

michigan

I new zero about epilepsy as a child! As i got to about 19 (1969) my life started to go wrong. I had headaches of a different type, they were so painful i could not go to work or get out of bed....

London

I cannot really remember a time when I didn't have epilepsy. I started having seizures when I was 5, partial seizures which were pretty unpredictable. But it was part of my 'normal'. I did...

When I was about 21 I started to have very vivid deja vu; to the point where it repeated in my head for minutes. At the time I was confused but thought, it’s normal everyone gets it. Then it got...

Scotland/New Zealand

Hi, I'm Keiran

Photosensitive Epilepsy is a small part of who I am, it's part of my day-to-day life. It's something that, for a long time, I felt had a huge, negative impact on almost every...

Merseyside

I started off having seizures at 15 years old; I didn’t know what they were at first and neither did my local GP until he referred me to a neurologist at Stepping Hill hospital.

My seizures...

Cheshire

I would like to share my recent discovery. Ever since my husband started working from home due to the Coronavirus lockdown my seizures have reduced significantly. Having him with me throughout the...

Brentwood

I was diagnosed at 18 and the cause was unknown until I started retracing my steps. I realised I began having seizures after I started having problems in my relationship. My neurologist said that...

Bury St. Edmunds

I was diagnosed with epilepsy from the age of 7 until I reached 35 of age my condition has become worse I would have absent seizures and falls in public and at home and This effected my work and...

London

I had my first epileptic seizure looking in the mirror.

It was a Sunday night and I had worked 8 hours at my part time job, and being exauhsted from partying the night before- taken a few...

Australia

My name is Alexandra, I am nearly 30 years of age and I live near Portsmouth.

At the age of 4 and half I was with my mum, dad and brother Angus staying with my grandparents in Scotland. One...

Portsmouth, Hampshire, England

I was born with epilepsy in 1957 and I was reciving liquid phinobarbitone as a baby till I was the age to swallow pills.

I was taking really bad seizures which were grand mal seizures. I...

Tullibody, Alloa, Scotland

Susan was 16 when she was diagnosed with epilepsy after a seizure at school. She was prescribed valproate, which proved effective in controlling her seizures. But she was never told at any point...

Belfast

Living new life with Epilepsy.

When I last saw my Epilepsy specialist many months ago at a hospital, she suggested I change one of the medications I've been taking for many years to a more...

Tunbridge Wells, Kent

I have a very unpredictable kind of epilepsy, no aura and clonic tonic seizures every couple of months without meds. Thankfully it’s been under control for 8 years now. I am on a lot of meds...

London

My son was born August 2000. At the time I was on 3500mg Sodium Valporate and 1000mg Pregabalin.

He was born with Secondary Spina-Bifida, Hydrocephalus, 2 cysts on the brain, vision...

Manchester

My name is Olivia, I am 21 years old and I was diagnosed with tonic- clonic epilepsy when I was 6 months old. My condition is rather sporadic, and I have no idea when my episodes will come and the...

Hi I’m Joe.

I was first diagnosed with refractory multifocal epilepsy at the age of 15. I really struggled to accept my diagnosis the first few years. I felt like I had been robbed of being...

Hertfordshire

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