Welcome to epilepsycast – the podcast about all things epilepsy, from Epilepsy Action. We’re looking forward to bringing you the latest epilepsy news and real-life stories every fortnight.

  • Ariish Wol

    Epilepsy month bonuscast - In conversation with model Ariish Wol

    This bonuscast celebrates International Epilepsy Month with an in-depth conversation with model Ariish Wol. Born in South Sudan, Ariish moved to Canada as a young child.

    She was diagnosed with epilepsy at 14. Her modelling career started with Vogue Italia and she not looked back since, most recently fronting campaigns for H&M and appearing at Paris Fashion Week.

    She talks about how she balances her wellbeing with the intense pace of modelling work, her dreams and discoveries. Ariish reflects on her upbringing, her epilepsy diagnosis and the traumatic events that shaped her. She also explains her huge struggle to cope as a young mother when hospitalised by seizures. The conversation covers some sensitive issues that may be upsetting to some listeners, including child sexual abuse and Ariish’s decision to put her child up for adoption.

    You can find Ariish on her Instagram @ ariish_wol

    MIND offers support to adult survivors of child sex abuse: https://www.mind.org.uk/information-support/guides-to-support-and-services/abuse/#SexualAbuseSupportForAdults

    Support is available to help parents with epilepsy. To find out more about caring for a baby or young child when you have epilepsy, visit https://www.epilepsy.org.uk/info/caring-children or contact the Epilepsy Action Helpline on freephone 0808 800 50 50.

  • Maisie Adam

    Talking epilepsy and comedy with Maisie Adam - Purple Day bonuscast

    “Ultimately, you have to find the light in it rather than the dark.” Epilepsy is hugely varied and affects everyone differently. For Purple Day 2021, we are excited to be able to share comedian Maisie Adam’s epilepsy story in this special bonus episode of epilepsycast. Diagnosed with epilepsy at 14, Maisie talks about her experiences coming of age with epilepsy and sharing it as part of her comedy routines. In this insightful chat, she reveals how humour helps her deal with the realities of her condition, and how she handles misconceptions that others have. She also shares insights into her comedy career and how she’s found doing stand-up in the global pandemic. You can watch ‘Vague’, Maisie’s standup show about her epilepsy, here - https://www.amazon.co.uk/Maisie-Adam-Vague-NextUp/dp/B07XZHK914 Transcript link: https://otter.ai/u/TMcCcQzuH0sEVr13guCT7pQclGI?f=