News

“Invaluable” support from someone who gets it
“Invaluable” support from someone who gets it
Kami Kountcheva | Marking Befriending week, Sharon and Katie share why they signed up for the Epilepsy Action 1:1 Peer Support service and what they…
New disability employment data show “little progress” for people with epilepsy
New disability employment data show “little progress” for people with epilepsy
Kami Kountcheva | New disability employment data from the DWP shows little progress for people with epilepsy, leaving “hundreds of thousands of talented people held…
Timms Review into PIP opens recruitment for steering committee
Timms Review into PIP opens recruitment for steering committee
Kami Kountcheva | The DWP has launched an Expression of Interest to be part of the 12-member steering committee, wanting to put disabled people “at…
Mum unaware of SUDEP until after daughter’s death – inquest
Mum unaware of SUDEP until after daughter’s death – inquest
Kami Kountcheva | A 22-year-old woman died from SUDEP without being told the risks and how to help reduce them, according to an inquest report.
SUDEP Awareness Day: Jo’s life, loves and legacy
SUDEP Awareness Day: Jo’s life, loves and legacy
Kami Kountcheva | This SUDEP Awareness Day, we share Jo’s story, championing openness, awareness and living life to the full.
Some epilepsy medicines still face supply issues, as government updates on supply chain
Some epilepsy medicines still face supply issues, as government updates on supply chain
Kami Kountcheva | Some forms of topiramate and phenobarbital are still out of stock, but government says “most issues” have been resolved.
Charli XCX criticised for “excessive” strobing in new film trailer
Charli XCX criticised for “excessive” strobing in new film trailer
Kami Kountcheva | Singer Charli XCX is facing backlash over the strobing images in the online trailer for her upcoming film, posted across her social…
Epilepsy and learning disabilities patients at Hywel Dda left stranded
Epilepsy and learning disabilities patients at Hywel Dda left stranded
Kami Kountcheva | Wales ombudsman finds patients with epilepsy and learning disabilities have been let down at Hywel Dda after its dedicated service ended.
Alice Oseman and R.W. Alley artworks up for grabs in National Doodle Day raffle
Alice Oseman and R.W. Alley artworks up for grabs in National Doodle Day raffle
Kami Kountcheva | Six coveted artworks will be included in the raffle, which comes after the most popular National Doodle Day auction to date.
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