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Success rates for epilepsy brain surgery in children

These pages are about surgery in the UK. If you are looking for information about surgery in another country, please contact your local epilepsy organisation.

The success rate depends on the type of surgery. Many children will no longer have seizures after epilepsy surgery. If they do, they usually have a lot fewer than before and will need to carry on taking their epilepsy medicine.

Children who have a temporal resection usually do better than those who have an extra-temporal resection. Approximately 7 out of every 10 children who have had surgery in a CESS centre will stop having seizures after their surgery.

Benefits and risks

The tests and assessments done before epilepsy surgery are very thorough and will help the doctors decide whether to recommend your child for surgery. Brain surgery will only go ahead if these tests and assessments show that the benefits are likely to be higher than the risk of complications. The doctors will, of course, talk to you about the possible benefits and risks for your child before any final decision about surgery is made.

Here are some possible risks:

Memory problems
The temporal lobes handle memory and language, so any surgery on the temporal lobes may cause problems with remembering, understanding and speaking. The memory problems can be for things that a child has seen (‘visual memory’) or for things that a child has heard (‘auditory or verbal memory’).

More seizures than before
Cutting the connections between the 2 hemispheres (sides) of the brain in corpus callosotomy stops seizures spreading from one hemisphere to the other. But it doesn’t stop all the seizures, only the drop attacks. In fact, some children may have more focal (partial) seizures, but they are less severe.

Visual symptoms
After hemispherectomy, a child’s vision may be reduced or they may have double vision. This is usually temporary, for a few days or weeks. They may also have some problems with their peripheral vision. This may be temporary or permanent and will depend on how much of the brain has been removed.

One-sided paralysis
After hemispherectomy or hemispherotomy, a child may have limited use of one side of the body. This one-sided paralysis is called a ‘hemiparesis’ or ‘hemiplegia’. Physiotherapy and occupational therapy can help with this.

Behaviour problems
Some children may have had behaviour problems before the surgery. Or they may have had problems communicating or relating to other people. Epilepsy surgery itself will probably not help these problems. It is even possible that in a very few children, these problems may become a little worse.

If you would like to see this information with references, visit the Advice and Information references section of our website. If you are unable to access the internet, please contact our Epilepsy Action Helpline freephone on 0808 800 5050.

Code: 
B157.02

Acknowledgement

Epilepsy Action wishes to thank Dr Richard Appleton, consultant paediatric neurologist at Alder Hey Children’s Hospital, Liverpool, UK, for his contribution.

Dr Richard Appleton has no conflict of interest.

This information has been produced under the terms of The Information Standard.

  • Updated May 2016
    To be reviewed May 2019

Comments: read the 2 comments or add yours

Comments

I have a friend who has photo ep. He gets no warning he just falls and fits .and makes grunting sounds coming out of the fit .he has lots of fits in a wk .I have spoke to him about an op .he looks so ill he looks under wait. Very grey skin .
He is 19 yrs old .

Submitted by paula cook on

Hi Paula
It’s good you are wanting to help your friend. It sounds like he’s having a difficult time

As your friend is still having seizures it would be worth him discussing with his specialist if his treatment is right for him.  They can review his treatment and look at other possible reasons for his seizures to still be happening. They may suggest trying a different epilepsy medicine.  If he’s tried various types of epilepsy medicines, it may be the specialist could look into other treatment options for him.

He could also look at anything that may be triggering his seizures. There are common triggers that affect some people with epilepsy, also there are specific triggers for someone with photosensitive epilepsy.

If your friend is not under a specialist, he will need to ask his family doctor to refer him. This would usually be to a neurologist. The ideal would be to someone with a specialist interest in epilepsy, as there are many different neurological conditions, and neurologists tend to specialise in different ones.

It would be helpful if your friend kept a diary of his seizures to show the doctors.

If it would help your friend or yourself to talk to us about his epilepsy, we can be contacted either by email helpline@epilepsy.org.uk or the Epilepsy Action Helpline freephone 0808 800 5050. Our helpline is open Monday to Friday, 8.30am until 5.30pm.

Regards
Diane
Epilepsy Action Advice and Information Team

Submitted by Diane, Epilepsy... on